Univera Grant will Support Education on Diagnosis of Chronic Kidney Disease Among Black Patients
Univera Healthcare has awarded the Kidney Foundation of WNY a grant of $5,000 for educational programming relating to the diagnosis of kidney disease and disparities in care for Black patients.
The use of equations with race adjustments for estimated glomerular filtration rate (eGFR) for Black patients has led to underdiagnosis of chronic kidney disease and undertreatment. Researchers have found that the estimated prevalence of chronic kidney disease among Black adults would double if race adjustments were eliminated. A national task force has shared recommendations for new calculations and improved care, which the Kidney Foundation of WNY will present in educational programs slated for fall 2022.
Univera Healthcare’s community health award funding will support innovative programs and solutions to advance health equity and ultimately improve health outcomes for underserved segments of the communities the health plan serves.
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Patient Stories
Joann Wellman of Frewsburg is hoping for a living kidney donor. She enjoys traveling to see her children and grandchildren. Kayaking, gardening and walking in the woods were some of Joann's favorite activities before she started dialysis in 2020. Read her profile at the Kidney Connection website.
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Missing a single dialysis treatment increases a person's risk of health complications and even death. That's why the Kidney Foundation of WNY has a program to arrange short-term transportation for patients in a time of need who require help getting to dialysis and medical appointments.
Unfortunately, the cost of transportation assistance is rising and we're receiving more requests than ever before.
Gifts through kfwny.org/rides will be dedicated solely to our patient transportation budget. Your donation will directly pay for rides that are urgently needed by people with kidney disease.
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WNY Support Group
The Kidney Disease and Transplant Support Group meets the third Thursday of each month on Zoom.
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The next meeting will be on June 16 at 6 p.m. with guest speaker Janet Dennis. Join the meeting at https://us02web.zoom.us/j/85280470018?pwd=MzhHWmRnM2lKL0RJNXJ1RTl4c2p3UT09
Or call: 1-646-558-8656.
Meeting ID: 852 8047 0018
Password: 198042
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DPC Support Group
The Dialysis Patient Citizens Support Group offers real time support and education to CKD patients at all stages, as well as support for their family and friends.
The group meets by phone on the second Tuesday of each month at 3 p.m. for one hour. The next call will be on June 14. Jessianna Saville, MS, RDN, CSR, LD, CLT, is the guest speaker. More information is online at https://www.dpcedcenter.org/news-events/dpc-support-group/
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Classes, Webinars and Activities
ECMC End Stage Renal Disease FREE Patient Education Sessions
In-person sessions available by appointment. Details at https://www.ecmc.edu/esrdpatientinfo/ Email educationclasses@ecmc.edu or call 716-898-1410 to register.
Getting to Know Your High Blood Pressure - Dialysis Patient Citizens
Thursday, June 23 from 2-3 p.m.
https://www.dpcedcenter.org/education-webinar/getting-to-know-your-high-blood-pressure/
Stop the Itch: Understanding CKD-Associated Pruritus
Are you on hemodialysis and suffer from moderate to severe itching? If so, it may be Chronic Kidney Disease-Associated Pruritus (CKD-aP). The American Association of Kidney Patients recently hosted a webinar on CKD-aP and the recording is now online at https://www.youtube.com/watch?v=aQVaeLWZjdk
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Kidney News
N.Y. Times | Targeting the Uneven Burden of Kidney Disease on Black Americans
New treatments aim for a gene variant causing the illness in people of sub-Saharan African descent.
Healio | Kidney donations from deceased donors with COVID-19 seen as safe
Kidney transplant recipients do not contract COVID-19 from accepting a kidney donation from a COVID-19-positive deceased donor, according to data published in the Journal of Urology.
Johns Hopkins | Coffee consumption linked to reduced risk of acute kidney injury, study finds
Researchers have revealed that consuming at least one cup of coffee a day may reduce the risk of acute kidney injury (AKI) when compared to those who do not drink coffee.
Kidney News Online | Editorial | Advancing LGBTQ+ Kidney Health Equity
Lesbian, gay, bisexual, transgender, queer or questioning, and/or other sexual and gender minority (SGM) individuals (LGBTQ+) represent a diverse range of people who experience disparities in health outcomes and other health-promoting resources and opportunities and are served by kidney care professionals
U.S. News | U.S. Task Force to Consider Routine Kidney Disease Screening as New Drugs Available
An influential U.S. panel has added screening for chronic kidney disease (CKD) to its list of preventive services under active consideration.
N.Y. Times | What a Gene and Its Risks Could Mean for Kidney Transplants
Kidneys from Black donors are automatically downgraded in transplant assessments, but studying a gene variant could help change that.
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