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Remember to complete the CPFF 2022 patient and caregiver survey
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Help us help you, by completing the Canadian Pulmonary Fibrosis Foundation 2022 patient and caregiver survey today.
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CPFF’s 2022 patient and caregiver survey is open for your responses until this Friday, June 10. Don’t miss this opportunity to share your experiences of living with pulmonary fibrosis so that we can create future plans that will help us to serve you better than ever. It takes about 15 minutes to complete the survey.
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Update from the CPFF Board Chair
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CPFF Board Chair Kirk Morrison offers an update on Board activities and plans for the coming fiscal year.
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Just thought I would let everyone know that the CPFF Board of Directors have been very active this spring. Our fiscal year ends on July 31, so to that end, we held a virtual, two-day Board retreat in early May where we developed priorities for next year. As well, at last week’s monthly Board meeting (again done virtually), we approved our annual budget.
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Gearing up for Pulmonary Fibrosis Awareness Month
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John Dennis, a 77-year-old lung recipient from Halifax, N.S., intends to cycle the 700-km Island Walk on PEI on his electric bicycle beginning on June 10 to raise awareness, hope and funds for pulmonary fibrosis.
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Now is the time to plan, organize and start promoting events and activities for September, national Pulmonary Fibrosis Awareness Month. We’ve got lots in store for you, including another outstanding series of educational webinars, as well as a brand new, do-it-yourself fundraiser kit with everything you need to create your own, local, walk, or other fundraising event.
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Study fills in some gaps on lung disease and rheumatoid arthritis
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CPFF funded a research study on rheumatoid arthritis related ILD, led by Dr. Lee Fidler (pictured above) and Dr. Andrea Gershon, who both work at Sunnybrook Health Sciences Centre and hold academic positions at University of Toronto.
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Using health services data between 2000 and 2018 from the province of Ontario, respirologist Dr. Lee Fidler and his co-principal investigator scientist Dr. Andrea Gershon of ICES, along with other colleagues, set out to investigate the incidence and prevalence of rheumatoid arthritis related interstitial lung disease (RA-ILD) in the province. The research was conducted at ICES and funded by a $20,000 research grant from CPFF.
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Webinar offers insights into genetics and PF
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A recent EU-IPPF webinar the Genetics of Pulmonary Fibrosis, features Dr. Richard Allen of the University of Leicester, in the U.K., discussing the genetic variants involved in the risk of developing the disease and its progression, as well as hope for potential treatments based on genetic research.
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Most of us are familiar with the double-helix structure of DNA that resembles a curved ladder. But did you know that there 3 billion chemical base pairs in human DNA? Any idea how many of those genes may be involved in pulmonary fibrosis (PF)? And why do some individual’s PF progress much faster than others?
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New clinical practice guideline for pulmonary fibrosis
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A number of respiratory institutions have collaborated to publish an updated clinical practice guideline for pulmonary fibrosis.
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The American Journal of Respiratory and Critical Care Medicine recently published an updated idiopathic pulmonary fibrosis (IPF) clinical practice guideline, which also addresses the progression of pulmonary fibrosis in patients with interstitial lung disease (ILD) other than IPF.
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Jacqui Bowick-Sandor faced life post-transplant with amazing grace
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Jacqui Bowick-Sandor with her husband Bruce, who she called her “main angel.”
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It is with great sadness that the Canadian Pulmonary Fibrosis Foundation (CPFF) learned that Jacqui Bowick-Sandor of Smith Falls, Ontario, passed away on May 19, 2022, just three days before her 57th birthday.
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