Aug 1/22
🍁 Who’s in Blog/Email Group?
You’ve probably already seen some of this info. I recognize many of the email addresses and remember some basic details about you. Are you open to an email or call (or video call) to confirm information or updates? Feedback, questions or other suggestions on what other ways we’re interesting or “diverse”? Thanks, Henry
- 37 (have been in this group) since Sept 2017
- 2 since Oct –Dec 2017
- 4 since 2018-19
- 3 since 2020-22
46 Total
Patients (VHL) total=19
- 5 First in family or de novo
- 10 subscribers who have family history of VHL (previous generations)
- 7 parents of children with VHL and has family history of VHL
Family members (non VHL) =10
- 2 parents of children with VHL
- 2 parents with family history of VHL
Friend=2
Professional=6
Unknown Not Confirmed=9
We also have a mailing contact list of over 100 names in Canada.
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‘Ways to give’ ideas
In general, it’s rare that someone clicks on a link. I’m not sure if it’s just lack of interest or fear of junk (e.g. adclick). I don’t use links, email addresses, to earn commissions. I never will.
However, I do get valuable feedback in who and what gets open (read)! Thank you.
I’m just trying to figure this ‘issue’ out… So, I’m throwing out some ideas. If you have any comments or feedback, I would really appreciate it.
We’re registered on canada.ca
https://apps.cra-arc.gc.ca/ebci/hacc/srch/pub/dsplyRprtngPrd?q.srchNmFltr=vhl&q.stts=0007&selectedCharityBn=800804676RR0001&dsrdPg=1
Canadahelps.org
https://www.canadahelps.org/en/charities/vhl-canada/
- It’s east to set up monthly deposits. For example, this person has set up an automatic $10 donation every month.
- Create your own fundraiser for any event, birthday, in memory of, in-honour of…etc.
- Make an individual online donation here and can choose to be anonymous).
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