🍁 Peer & Public Social Media (VHLC on Facebook) numbers
VHL Canada Online Peer Community, April 2021
24 total in this small and mighty group:
• 8 members - 7 years
• 3 members- at least 4 years
• 5 members - at least 2 years
• 8 (the rest of) - members - 1 year and less...
VHL Canada Public Awareness, April 2022
Yes, it may not be “Amazon” or “Shark Tank” type numbers, but it’s still significant!
I make contact with requests through email/online social media and sometimes phone contact - to verify basic VHL “identity” and get to know everyone as much as possible.
Over the years I’ve actually met 5 VHL patients and a few family members in person. If I posted someone’s passing away, I would have known them from some kind of group or individual contact.
I update and moderate these pages daily. We also have weekly group chats online.
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