Aug 6/22
🍁 Proactive Support… more numbers *
Provinces
- Online group: 7 ON, 3 QC, 4 AB, 3 MB, 2 NL, 1 NB, 1 BC, 1 Outside NA (UK)
- Blog/email group: 14 ON, 10 AB, 7 QC, 4 BC, 1 MB, 3 NL, 3 Outside NA (e.g. Australia) and 5 Unknown
Public Awareness Page (VHL Canada on Social Media/ Facebook) www.facebook.com/vhlcan
Website www.vhlcan.ca : last 12 months/daily averages
- Daily Page Views: 5.4
- Daily Unique Visits: 2.7
- Daily First Time Visits: 2.2
- Daily Returning Visits: 0.5
We also have a general mailing contact list of over 100 names of VHL patients and family members in Canada.
Based on 1/36000, there are 900 or more people with VHL in Canada (estimate varies with annual changes in population!)
* Just like the over 20 international VHL patient groups (see VHLA and site vhl.org), we want to be proactive with our country's VHL community.
Please share any questions and feedback. Thanks, Henry
|
|
|
|
