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Cystic Fibrosis News Today's Daily Digest
Your Online Resource for the Latest CF News
In the 06/11/2021 edition:

How I Discovered That PTSD Was Causing My Post-transplant Struggles

By Lara Govendo on Jun 11, 2021 09:00 am

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidaysMy whole life changed after I had a double-lung transplant three years ago. When drastic life changes occur, they can shake us to the core. We can struggle to understand the implications of what we are going through until we’re already facing the aftermath. That’s what happened to me when I found myself struggling after […]

The post How I Discovered That PTSD Was Causing My Post-transplant Struggles appeared first on Cystic Fibrosis News Today.

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CFTR Modulator Adherence High in Kids, Teens on Symdeko, Orkambi

By Aisha I Abdullah PhD on Jun 11, 2021 07:00 am

CFTR modulator adherenceChildren and adolescents on Symdeko (tezacaftor/ivacaftor) and Orkambi (ivacaftor/lumacaftor) for cystic fibrosis (CF) had higher treatment adherence rates compared with adults given the same CFTR modulators, a nationwide study in the U.S. found. The study also showed that adherence — patients choosing to follow through with a prescribed treatment — among people of all ages with CF […]

The post CFTR Modulator Adherence High in Kids, Teens on Symdeko, Orkambi appeared first on Cystic Fibrosis News Today.

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Greater Gut Bacterial Diversity Evident With Kalydeco’s Use

By Steve Bryson PhD on Jun 10, 2021 07:00 am

Kalydeco and gut bacteriaTwo months of treatment with Kalydeco (ivacaftor) by cystic fibrosis (CF) patients who carry a CFTR gating mutation significantly increased the diversity of bacteria in the gut but not in the respiratory system, a small study reported. A larger and longer study might be necessary to best determine how treatment affects the respiratory system, its researchers wrote, […]

The post Greater Gut Bacterial Diversity Evident With Kalydeco’s Use appeared first on Cystic Fibrosis News Today.

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