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Cystic Fibrosis News Today's Daily Digest
Your Online Resource for the Latest CF News
In the 06/07/2021 edition:

Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases

By Marisa Wexler MS on Jun 07, 2021 09:55 am

Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for rare diseases to ensure that none of the 30 million people in Europe living with rare diseases are left behind by the start of a new decade. As part of the campaign, rare disease patients and their […]

The post Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases appeared first on Cystic Fibrosis News Today.

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Bridging the Divide Between the Individual and the Community

By Tré LaRosa on Jun 07, 2021 09:00 am

community, motivationWhen I was asked to write this column over two years ago, I was thrilled, but I wasn’t quite sure what I wanted to write about. I knew I would have some leniency to tackle different subjects, and I didn’t want to be boxed in. But I also wanted to maintain a common thread across […]

The post Bridging the Divide Between the Individual and the Community appeared first on Cystic Fibrosis News Today.

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User-friendly Digital Health Tools Now Available in Canada

By Patricia Inacio PhD on Jun 07, 2021 07:00 am

Digital Health ToolsThe nonprofit Cystic Fibrosis Canada has teamed up with technology company iMD Health Global (iMD) to make user-friendly digital health tools for cystic fibrosis (CF) available to both patients and healthcare professionals. The  goal is to boost understanding of the disease and how to best manage it. Through its iMD Health platform, the Canadian software […]

The post User-friendly Digital Health Tools Now Available in Canada appeared first on Cystic Fibrosis News Today.

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