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Newsletter June 2021

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Transforming lives of people with disabilities and special needs
through the use of assistive technology

Dear family, friends and supporters

We hope this finds you all safe and well, and we continue to send thoughts and prayers to those who are struggling during these difficult and challenging times. 

In our last newsletter we told you about the challenges we faced trying to raise funds during the pandemic and the ever increasing demands for our help.  

Well, here at JSF HQ,  we were very touched by your big hearted response. We have so much to be grateful for...

Special mention and thanks to star supporter William Tilden for another extremely generous donation.

Also huge appreciation to family member and JSF associate Fiona Anderson for calling on the family to make donations which her employer agreed to match!!
Thanks so much to all of you who donated and thank you  The Futures Laboratory 

And a very special thank you to acclaimed, best selling author Fiona Valpy who recently made an incredibly generous donation. 

More good news - we recently received another £500 grant from the Buzzacott Stuart Defries Memorial Fund.

We are really delighted that Buzzcott decided to award us this grant for a third time and, in accordance with their charitable purpose, these funds will be used to support a young person in the London area. 

On the fundraising front, we must again extend enormous gratitude to King's College School - Bourne House and to Surbiton High School - Pankhurst House for their ongoing support through some very creative social distancing fundraising events.

And an exciting piece of news - we recently celebrated our SIXTH anniversary. It has been an amazing 6 years; in that time we have raised £52,879 and awarded FORTY FOUR grants totalling £51,655. 

Thank you to each and every one of you who helped to make this possible!!l

As we mentioned last time, we have been inundated with requests for grants where needs have become more acute due to isolation and limited access to technology. Each case makes difficult reading and, sadly, we have to say "no", more than we can say "yes".

We do have to make some tough decisions in order to make sure that our funds are used in the best possible way. 

The good news is that, since our last newsletter, we have made SIX more grant awards; five to individuals: Terry, Andrew, Mia, Ian and Lucy and one to Stratton Primary School to support 30 children with special educational needs and disabilities. 

GRANTS AWARDED

  Terry

Terry is a 33 year old with autism and difficulties communicating on all levels: reading, writing and social relationships. He struggles with completing tasks and with all things financial, so requires constant supervision.

Terry had a short trial of the C-Pen (text to speech scanner) and it helped him to read labels on cooking ingredients, enabling him to prepare his meals unsupervised! He also used the pen to read birthday cards from his family and to read the local newspaper. He loves comics and was also able to read these unaided.

Terry's Housing Support worker and his mother could both see that having a C-Pen of his own would provide him with much needed independence and would provide him with confidence in his abilities to do things for himself and to enjoy his hobbies.

Terry was awarded a grant of £240 to fund the C-Pen

Andrew

Andrew is a 36 year old who has severe spinal and brain injury and is now a tetraplegic. He has had a long spell in hospital and is due home soon. He will never fully recover, which means that he will need care staff to help him with his every day needs.

Although Andrew has the use of his hands, he has difficulty with a keyboard. However, he can use a tablet. With a tablet he can control lights, TV, heating etc. making him less dependent on care staff. He can also stay in touch with family and friends.

Andrew wants to be able to work again and give something back to the community. He hopes to start work in graphic design and advertising as soon as possible. He had been using a very basic tablet but it lacked the functionality he needed to be able to install the apps required for work and for increased independence. 


Andrew was awarded a grant of £912 to fund an iPad Pro

Message from Andrew: "I would just like to say a big Thank you to all the people working and supporting your charity. I was very grateful to receive a grant for a grant for an apple 12.9 pro.... I am a complete tetraplegic and wheelchair user and have been for the last ten years. I struggle to use a normal keyboard but the tablet keyboard is really easy to use. There's also a great deal of applications available to do art graphics and writing. This means when I leave hospital I can work from home, stay connected and control my flat all from the tablet...So I am very grateful to the Janki Saye foundation."

 Mia

Mia is a 10 year old with Tuberous Sclerosis and epilepsy and she is non-verbal.

Her family and teachers had been using a basic iPad app to try and communicate with her, but she found it very frustrating as she was not always able to communicate her needs and preferences.

Mia's Speech and Language Therapist had been using a more advance app with her called Snap Core First and she responded very well. She had been set up with some core words and she understood the cause and effect of these words such as Stop and More!

Mia's mother was very keen for her to have access to an iPad with this app at home so that she could further develop her communication skills and enable her to better interact with her family. 


Mia was awarded a grant of £429 to fund the iPad with the Snap Core First app

 Ian

Ian is a 40 year old who has been registered blind since 2013 as a result of a genetic condition called Leber's Hereditary Optic Neuropathy. He also has MS. He is unable to read text at all, even with magnification as his vision is very blurred. His MS impacts his mobility and the combination of both conditions affects his ability to lead an independent life.

When Ian lost his sight he felt that he would never be able to use a computer again as he couldn't see the screen and keyboard. Then, two years ago, he engaged with the services of sight loss charities and he met other visually impaired people who made him aware of technologies that could help him. 

Now he use a smartphone with voice activated services to help him with some tasks, but his goal is to improve his skills and knowledge and complete some online courses which will enable him to start working again. He doesn't know if this is realistic, but his support worker from the Sight Loss Association says that he has been doing some voluntary work and feels that he has a lot to offer.

Ian tried using a laptop with the Narrator software and this made it possible for him to access and read online documents and websites etc. If he had his own laptop with this software, he could work towards his goal and it would also help with online shopping and banking.

Ian was awarded a grant of £630 to fund a laptop and the Narrator software 
 

 Message from Ian: "I would like to thank you for the grant... I am part of the Sight Loss group and I am taking part in the training so I will be able to assist others and the laptop I received will be put to good use. Again thank you so much".

Stratton Primary School

The Special Educational Needs and Disabilities (SEND) department at Stratton School identified the need for assistive technology to help support their students with remote learning and in the classroom.

The assistant head teacher for Inclusion and SEND had two children assessed by Tech Ability who provided her with suggestions as to which technologies could help support these children as well as other pupils with similar profiles. 

The school had been fortunate to receive some laptops and Chromebooks from the Government during the periods of remote learning. However, the assistant head felt that they could help their children make significant progress if they has access to more assistive technology to complement these devices. 

The desire was to be able to purchase headsets for individual children with cognition and learning difficulties so that they could dictate their sentences and hear the text read back. Also, it was recommended that they have a range of different keyboard styles for children who find it difficult to locate the keys on a conventional keyboard. And they wished to purchase the Clicker app to help pupils who are unable to record their thoughts without pictorial support. This app has been recommended as a resource that could help these children with their independence and success in writing. 

Stratton Primary School was awarded a grant of £1,360 to fund 30 headsets, 10 special keyboards and a 10 user subscription for the Clicker app.

Message from the assistant head teacher: "We haven't received the headphones yet but they are on their way! Our children are really benefitting from the use of the keyboards and the Clicker program. I am so very grateful to the Janki Saye Foundation to be able to provide this for our pupils" 

Here is Robert using a new keyboard with lower case letters and Clicker to help him record his ideas
Year 6 children have also benefitted from using the Clicker program and are learning all about Mayans

Lucy

Lucy is a 7 year old with Autism Spectrum Disorder, severe speech, language and communication difficulties and also sensory processing difficulties. She requires constant help, encouragement and supervision and often gets upset because she is unable to consistently express her feelings, wants and needs. The family engage in a lot of adult led activities and also follow a Speech and Language Therapy (SALT) program. 

Lucy has been using the Prologuo2Go app on an iPad and has shown exceptional progress. She has been able to use a range of vocabulary, including nouns, verbs and adjectives. Having this vocabulary and ability to communicate is allowing Lucy to express herself and enables her to start to assert her independence. In order for Lucy to continue her development she needed a new iPad to replace her old one which no longer works.

Lucy was awarded a grant of £329 to fund the iPad.

Message from Lucy's mother: "we are very grateful to the Janki Saye Foundation and their supporters for funding Lucy's iPad.  We use a Total Communication approach and visuals to help Lucy understand and express herself. We cooperate closely with a Specialist SALT.....Lucy uses the communications systems every day with the help of adults. Her main communication system is Prologuo2Go. When she is motivated, she uses the app spontaneously and independently. She uses it in all environments (at home, school and outdoors).....We really appreciate a quick response and generous donation from Janki Saye Foundation. Thank you very very much!"

After reading these stories, we are sure you will agree that, once again, we have been able to bring some joy to quite a few lives. 

And, as you can see, in some cases, a relatively small amount of money can make a huge difference.  

But there are still people out there who need our help so let's keep doing what we are doing!! 

HOW CAN YOU HELP?

Spread the Word

Please feel free to share this newsletter with family, friends, colleagues and anyone else you think will be interested in the work we do.

The more support, the better!!

Regular Donations

We do depend on a regular stream of income and are extremely grateful to those of you have who have set up monthly donations.

Even £10 a month would really make a difference. So why not consider setting up a regular payment now. 

And, of course, one-off donations always make us very happy!!!

Please c
lick here for payment options. 

Get Involved

Please visit the Get Involved page on our website for inspiration and ideas!

Declutter and Donate

Ziffit is a free and easy to use app and website to sell unwanted CDs, DVDs and games.

They have an innovative partnership with Virgin Money Giving which means that you can easily donate the trade in value of these items to the Janki Saye Foundation.

Have a look: Another way to donate and show your support - Virgin Money Giving

Grant  Giving

Our goal is to seek out opportunities to apply for significant grants so that we are able to meet the ever increasing demands for our support. 

So if you have any contacts or know of any organisations who would consider us for a grant, we would love to hear from you.



Thank you for taking the time to read our newsletter. We really appreciate your support.


We wish you all the best - stay safe and well. 




Sheila Saye 
Director, Janki Saye Foundation

www.jankisaye.org

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