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Shwachman-Diamond Syndrome Alliance

2021 June Edition - It’s All About the Mouse

Webinar “All About the Mouse” this Friday, June 25th, at 12 noon Eastern Time.

The kickoff of the SDS mouse project generated a lot of excitement in the community, so we decided to host a webinar to answer all your questions! Coming up this Friday! Register below.

Registration link to zoom webinar

Read about the launch on our blog, here:

Read about the launch of the mouse project with The Jackson Laboratory, here.

Let’s fundraise for the mouse project, together!

This project offers an opportunity for the whole community to step up and help support it, together. If you would like to donate or set up your own fundraiser, its quick and easy using our secure platform below. (Facebook works, too)

Link to the fundraiser

Advocating for SDS Research at Rare Drug Development Symposium

Link to blog about RDDS

Quick video about our mission and vision, here:

Turn Hope into Action - How We Will Find a Cure for SDS
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