This June, we observe men's health and sickle cell disease!

View this email in your browser

Happy Men's Health Month to all our men, especially those in the sickle cell community!

Summer has officially arrived! As we look forward to the warm summer months, we’re taking a few moments to share with you all of June’s happenings. From Men’s Health Month to World Sickle Cell Day, June was jam packed with important campaigns and impactful conversations amongst community members. To learn more, keep reading. See you in July!

CONTENTS

– Men's Health Spotlight: Clayton Andrews, SC M.A.N
– Overheard in the Sickle Cell Community
– Men's Health and Sickle Cell Disease
– World Sickle Cell Day Recap
– Meet the new Sickle Cell 101 team members!
– Partner Spotlight: Chiesi Global Rare Diseases

Men's Health Spotlight: Clayton Andrews

We had the wonderful opportunity to meet and speak with Mr. Clayton Andrews, a sickle cell warrior with the HbSS genotype, a sickle cell disease advocate, and a proud girl dad who is the father of three girls biologically and eight in total. Mr. Andrews is also the Chair and Co-founder of the Sickle Champions Men’s Action Network (SC M.A.N), which is a mentoring organization geared and designed for the guidance and empowerment of young males with Sickle Cell Disease into their transition into adulthood. Read the full interview to find out what advice he gives to men living with sickle cell disease and what the world should know.

Are you a man living with sickle cell disease? Do you relate to his story? Let us know!

Men's Health and Sickle Cell Disease

Dr. Keith Quirolo (Dr. Q) shares information, tips, and food sources to support good health for men. Click on the image below to be directed to more insight on how to make sure you're at your healthiest.

World Sickle Cell Day Recap

In case you missed it: in honor of this year's World Sickle Cell Day on June 19th, we shared facts about sickle cell to help educate the general population and engaged in conversations with the sickle cell community about the many Dimensions of Sickle Cell.

We are grateful to everyone who took the time to participate in this year’s campaign. Check it out on our Instagram page and watch the community's responses on our YouTube channel.

New Team Members: Why I Joined the Sickle Cell 101 Team

Introducing the newest SC101 team members! Read below as they explain why they joined the team.

Grace Omotunde, Content Program Manager

“I joined SC101 to commit to my passion of bringing reliable and necessary information to the Sickle Cell community to ensure that all of us get to lead healthier, longer, and enriched lives. As someone with Sickle Cell Anemia, I want to share the message that it is possible to accomplish all of your heart’s desires; sickle cell may be part of you, but it doesn’t have to have you.”

Shawna Barnes, Operations Lead

"I joined SC101 in order to make a larger impact on the Sickle Cell community at large, so that patients would know that there are many different ways to maintain a healthy lifestyle while living with Sickle Cell.”

Terry Jackson, CaRISMA Program Manager

“I joined SC101 for the privilege to work on a collaboration between researchers & community based organizations on a sickle cell disease study. I'm passionate about working with & on behalf of the SCD community here in the US & abroad.”

Yeon Joo Ko, Administrative Assistant

“I decided to join SC101 and now have the honor of being the Admin Assistant because I wanted to better connect with people living with SCD. I wanted to be involved with an organization that directly helps and connects people living with sickle cell. I love being on this team and helping out in the background!”

Partner Spotlight: Chiesi Global Rare Diseases

This month, we spotlight our partner, Chiesi Global Rare Diseases, and their platform that educates on iron overload and iron chelation in sickle cell disease.

How do you know that your iron chelator is right for you? Unless your doctor is checking your iron levels regularly, you don’t.

Chiesi's interactive educational resource, www.ourironwill.com, is designed to empower appropriate chelation choices for those living with and treating transfusional iron overload due to sickle cell disease.

Don't forget to follow us on social media

This email was sent to <<Email Address>>
why did I get this? unsubscribe from this list update subscription preferences
Sickle Cell 101 · 760 Newhall Drive #1085 · San Jose, CA 95110 · USA