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Last chance to register

Join us on Thursday for our Ask the Experts webinar featuring a panel of chordoma experts who will answer questions from patients and caregivers about chordoma and chordoma treatment.

Ask the Experts


Date: Thursday, July 22, 2021
Time: 1:00 PM to 2:30 PM ET
 
REGISTER NOW »

You may ask questions live during the webinar, or submit questions in advance when you register.

This webinar is part of our 2021 Virtual Chordoma Community Conference Series. You can view the previous webinars in the conference series, Options for Comprehensive Pain Management and Dealing With Cancer-Related Fatigue, on our website.

Moderator

Ed Les, MD
Clival chordoma survivor, CF Board member, Chair of CF Patient Services Committee

Panelists

Ziya Gokaslan, MD
Spine Neurosurgeon, Brown Medical School and Lifespan Hospitals

Vinai Gondi, MD
Radiation Oncologist, Northwestern Medicine Chicago Proton Center

Mrinal Gounder, MD
Medical Oncologist, Memorial Sloan Kettering Cancer Center

Erin McKean, MD
Otolaryngologist, University of Michigan Health System

Information provided by the panelists will not be patient-specific and is not medical advice. Please follow up with your doctor to discuss the information you learn from this webinar.

NEW! Virtual support groups for chordoma

A rare disease like chordoma can be lonely, so we provide ways for patients, survivors, and co-survivors to connect with one another, like our new virtual support groups. We offer two virtual groups that are run by talented facilitators who have experience providing support and resources to those affected by cancer. Once a month, the groups meet for an hour on Zoom. To maximize discussion and connection, registration for each group is limited to 25 people on a first-come, first-served basis every month.

 

Patients and survivors support group

When this group meets: Second Tuesday of each month

Next meeting: August 10 at 6 PM ET

Register for the next patients and survivors support group meeting »

 

Caregivers and co-survivors support group

When this group meets: Third Wednesday of each month

Next meeting: July 21 at 6:30 PM ET

Register for the next caregivers and co-survivors support group meeting »

No matter where you are on your journey with chordoma, your role in that journey, or your location in the world, we're here to help

Contact a Patient Navigator »

Chordoma is a solvable problem, and patients are accelerating our focused quest for solutions.

Check out five ways to help drive new discoveries.

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