Brain tumours and COVID-19 vaccines
International survey
Dear Friends,
We would be grateful if you could support a new international survey on COVID-19 vaccines and brain tumour patients.
Last year, the IBTA ran two international surveys examining (1) “Brain tumours and COVID-19: the patient and caregiver experience” and (2) how COVID-19 was affecting brain tumour patient advocacy organisations. The results of these surveys were published in the peer-reviewed journal Neuro-Oncology Advances and can be found here and here. A lay summary of the first survey (“Brain tumours and COVID-19: the patient and caregiver experience”) can also be found via the IBTA website here. We are delighted that the results of these two surveys are proving to be an invaluable data resource for the scientific community and the not-for-profit sector.
Our new survey on COVID-19 vaccines and brain tumour patients is for people over the age of 18 who have been diagnosed with any type of brain tumour (including metastatic brain tumours). The survey will collect data anonymously on, for example, how the coronavirus vaccination programmes in different countries have been offered to brain tumour patients; COVID-19 testing; which vaccines brain tumour patients have received; and vaccine side effects in brain tumour patients.
Please help us distribute this new survey to as many adult patients in the brain tumour community as possible. The survey is available in eight languages (English, French, German, Italian, Japanese, Polish, Spanish and Urdu) and typically takes no more than ten minutes to complete. The deadline for submitting survey responses is 31st August 2021.
Sharing the survey
The direct links for all languages are below:
English: https://www.research.net/r/IBTACOVIDVAX
French: https://www.research.net/r/IBTACOVIDVAX?lang=fr
German: https://www.research.net/r/IBTACOVIDVAX?lang=de
Italian: https://www.research.net/r/IBTACOVIDVAX?lang=it
Japanese: https://www.research.net/r/IBTACOVIDVAX?lang=ja
Polish: https://www.research.net/r/IBTACOVIDVAX?lang=pl
Spanish: https://www.research.net/r/IBTACOVIDVAX?lang=es
Urdu: https://www.research.net/r/IBTACOVIDVAX-ur - Please note that Urdu can only be accessed via this link.
QR codes: Please feel free to distribute the QR code for the various language versions of the survey, which can be downloaded from the IBTA website here. A separate QR code for the Urdu translation can be found here.
Sample social media post for the survey: If you wish to disseminate the survey via your social media channels, here is a suggested post to copy and paste:
Have you or a loved one been affected by a brain tumour? Please complete this short survey on COVID vaccines and adult brain tumour patients: https://www.research.net/r/IBTACOVIDVAX #braintumour #braintumor #COVIDVaccines #IBTACovidSurvey #supportresearch #BTSM
Finally, we are aware that some people had difficulty in submitting their survey results last week due to a technical issue. This has now been resolved.
Thank you very much for disseminating the COVID-19 vaccines and brain tumour patients survey. We greatly appreciate your support.
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