"Never let the things you cannot do prevent you from doing the things you can do" Coach John Wooden

Visit our website www.shakersanonymous.org

Our Next Meeting September 14th

The Support Group Meeting with Jay Stratoudakis scheduled for Tuesday, September 7 at 7:00pm
is cancelled in support of our care partners who observe Rosh Hashanah and go to temple.
(See everyone on October 5.)

Tuesday, September 14th at 7pm Sharon Krischer, a.k.a. Twitchy Woman, will be speaking to our Shakers Anonymous support group about her journey with Parkinson’s Disease and lessons she has learned.

Sharon Krischer was diagnosed with Parkinson’s Disease in October, 2009, after several years of experiencing odd symptoms. Ever since she has read everything she could find on Parkinson’s with the goal of finding a way to move on – literally – and not be defeated by the disease.
A busy person prior to her diagnosis, she continues to find ways to fit more into her days than most people. Daily exercise is a key component for her to live successfully with PD. She continues to play tennis, badly, go to yoga and boxing classes, travel around the world and more (obviously amended due to COVID19). In addition, Sharon is often asked by friends to speak to a relative/friend/co-worker who has been newly diagnosed with Parkinson’s. As a result, in 2015 she started her blog “Twitchy Woman’s Adventures with Parkinson’s” to encourage the exchange of ideas and solutions with others whose lives have been affected.
When COVID19 hit in March, 2020, Twitchy Woman, like Shakers Anonymous, turned to Zoom to bring the PD community together. Sunday Mornings with Twitchy Woman is a virtual social, educational, and support group for women with PD that has been meeting every other Sunday morning since March, 2020. Attendance skyrocketed from 8 women at the first virtual meeting to over 350 worldwide who have participated in the past 18 months.

Sharon serves on the Parkinson’s Foundation California Chapter Advisory Board and among other things, was the official blogger for the 2019 World Parkinson Congress in Kyoto.
She lives in Beverly Hills, California, with her very supportive husband, Joel. They have three daughters and four grandchildren.

Be sure to tune in on Tuesday, September 14^th at 7pm to hear Twitchy Woman’s story!

October 12th Brian Kopell, MD a Neurosurgeon from Mt Sinai Hospital and his Nurse Practitioner, Meredith Spadaccia will be speaking to us about their new Brain Wellness program. Read more...

October 26th Joy Antonelle de Marcaida MD from Hartford Healthcare in Vernon CT will be speaking to us about a recently approved medication for PD called Nourianz (Istradefylline) by Kyowa Kirin Pharmaceuticals.

NOURIANZ is a prescription medicine used with levodopa and carbidopa to treat adults with Parkinson’s disease (PD) who are having “off” episodes.

https://www.nourianz.com https://hartfordhealthcare.org/find-a-doctor/physician-detail?id=003j000000GD3VbAAL

November 9th Cristina M. Pino M.A., CCC-SLP Cristina will be speaking to us about incorporating their "Speak Out" Program with our PDBM program. Read more…

Click here for podcast of previous meetings

Remember to sign up for our new Shaker's Anonymous team for the MJFF virtual 5K/10K/Half Marathon scheduled for Saturday October 2nd.
https://foxtrot.michaeljfox.org/virtual5k10k/ShakersAnonymous

If anyone has questions regarding the MJFF Virtual Run/Walk, they can reach me by email:
marion.fioretti@gmail.com

The Parkinson’s Journey - Understanding Progression

Wednesday, September 1, 2021 | 1 p.m. to 2 p.m. ET
Parkinson’s disease (PD) impacts every person living with the disease in different ways — from early signs to symptoms and progression. Learn more about patterns of progression, where you or your loved one tracks in the course of Parkinson’s, and how to navigate changes along the way working alongside your care team. Read more...

PARKINSON’S NEWLY DIAGNOSED RESOURCES

“You have Parkinson’s.” An estimated 60,000 people in the US hear these three words each year, setting them on a journey that, for so many, is filled with more questions than answers, especially in the beginning. But after 16 years of working to help people live well with Parkinson’s, we know these three words don’t have to mean giving up on the kind of life you imagined for yourself or your family. We also know that the longer it takes for someone to find the resources they need to live well, the longer their Parkinson’s will present challenges that affect their quality of life in negative ways. To help you get what you need, here is a collection of our most popular and helpful Parkinson’s resources for people who have been newly diagnosed. Read more...

Sherwood Island State Park Pavilion
REGISTRATION BEGINS AT 10:00 AM
WALK BEGINS AT 11:00 AM
Saturday, October 2, 2021

JOIN US IN PERSON! WE CAN'T WAIT TO SEE YOU!
Register now and be a hero for people with Parkinson’s!
* Online registration is strongly encouraged *

Click Here for information about boxing gloves.

The number of spots per boxing class has been increased from 10 to 15. Starting in September we are planning to add an option to participate in the classes via zoom.

Call 203-226-8981

Information regarding the fall schedule:
https://westporty.org/programs-services/health-wellness/parkinsons/

Also, if you choose to participate in the Parkinson's Body and Mind Program classes we strongly encourage you to wear a mask. https://www.cdc.gov/coronavirus/2019-ncov/variants/delta-variant.html

Parkinson's Body & Mind Program | Greenwich YMCA

The YMCA of Greenwich is a Rock Steady Boxing Affiliate and has created a new boxing studio with padded flooring for safety. Pat Francois, Interim CEO said, “As a Rock Steady Affiliate and with our new boxing studio, the YMCA is in a great position to support members of the PD community”.

There is a temporary hold for
Thursday boxing with Heather.

Parkinson’s Program pass that allows for unlimited classes in house and virtual Greenwich YMCA (activecommunities.com)

Class Schedule

Click on images to connect to the websites