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December 2021

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Social inclusion

Social inclusion is very important for people living with dementia as being socially active can boost your brain health and improve your emotional wellbeing.

Unfortunately, many people with dementia feel more isolated since their diagnosis. They describe friends falling away and they stop being invited to events. Some people with dementia avoid social situations as they are worried about how others will treat them, or about being embarrassed.

If you, or someone you support has dementia, we encourage you to reach out to friends, even if you weren’t usually the person who did the organising.

Read these helpful articles on this website: Find out how others have ensured they keep socially active:

Bill Yeats: the Hello! initiative

I have learnt that the simple but friendly gesture of saying ‘Hello’ to another person is in itself a very powerful statement.
Not only are you reaching out and inviting a person to start a conversation, but you are also acknowledging their presence in a caring way. 

Other socially inclusive initiatives

Dementia Friendly Communities

The Dementia-Friendly Communities program, supported by Dementia Australia, aims to work with local community members and businesses to develop inclusive communities that enable people to live well with dementia. The program also aims to reduce the stigma, isolation and discrimination experienced by many people living with dementia.

Dementia-Friendly Communities involve people living with dementia and their supporters/carers.

Explore your community. Find your local Dementia Alliance and see which organisations and businesses are making your community more inclusive.

If your community is not currently active in this movement, consider how you could get involved to help create a Dementia Alliance in your area. Contact Dementia Australia on 1800 100 500. 

Online Peer Support Groups

Dementia Alliance International Global run weekly online peer support groups in Australia (Mondays, Wednesdays and Fridays) and Weekly Living Alone Social Support Groups.

Participants describe peer support groups as a safe space to be themselves, and develop real friendships. The peer support group is a reciprocal experience. It provides an opportunity to support others as well as receive support yourself.
 

OPAN Stay Connected

Older Person’s Advocacy Network detail a number of wonderful initiatives under their Stay Connected program. One of these is the Community Visitors Scheme (CVS). This Australian Government initiative aims to reduce loneliness and isolation of older people via volunteer visitors.

Visitors are matched to the older person based on shared interests, and if requested, cultural background, gender and sexual orientation. Volunteer visitors make regular contact and provide friendship and companionship. The program is beneficial for both the volunteers and the older people.

You can request to have a visit or become a volunteer visitor via OPAN or contact the Stay Connected and Supported Line on 1800 001 321 8am – 8pm AEST Monday to Friday.

FriendLine

The Australian Government initiative, FriendLine is for anyone who needs to reconnect or just wants a chat. All conversations with FriendLine are anonymous and their friendly volunteers are ready for a yarn and to share a story or two. Contact FriendLine on 1800 424 287.

Be Connected – digital inclusion

Be Connected is an Australia wide initiative empowering all Australians to thrive in a digital world. They offer online learning resources and a network of community partners – the Be Connected Network – who can help you develop your digital skills and confidence. Find a local place for friendly help and advice. Some areas are now offering face-to-face lessons. Contact 1300 795 897 (9am-5am AEST).

FWD in 5 countries!

We are excited for our partner countries in the United Kingdom, Poland, the Netherlands and Canada who have also launched Forward with Dementia websites and campaigns. You can visit their websites via the global link:
https://www.forwardwithdementia.org

Printed resources

We've been busy sending printed resources to diagnosticians and health professionals who provide post-diagnostic support. These include patient resource sheets, a checklist for the diagnostic conversation and FAQs for people with dementia and their families.
You can download resources for people living with dementia and carers, or for health professionals via the website.

Webinar: Rethinking Support after Dementia Diagnosis

Prof Lee-Fay Low and A/Prof Lyn Phillipson presented this important webinar for health professionals on 11 November. There were over 100 participants and since the webinar has been uploaded to our YouTube Channel, over 180 additional views. If you attended the webinar and want a copy of the links and references included in the Q&A, please visit the webinar post. The chat transcript, references and links are at the bottom of the post.

Post diagnostic support programs

We've recently showcased two post-diagnostic support programs on our website, iREADi and COPE.

Integrated Rehabilitation for Early Stage Dementia, or the iREADi program, aims to improve the participation, wellbeing, and quality of life of people living with early-stage mild dementia and their carers. 

COPE, Care Of People with dementia in their Environments, is a home-based, multi-visit, tailored program designed to address the symptoms of dementia with the aim of improving the wellbeing of people with dementia and their carers.
 

Get involved

You are invited to provide feedback on our website and other activities as part of the Forward with Dementia program.
  • People with dementia and their supporters, carers and family can participate in a 20-minute survey by clicking the link below. We will respond by sending you a link to the survey. You can also complete the survey over the phone, or request for a paper version to be posted to you.
  • Others involved in dementia diagnosis and care can provide 2-minute feedback via the link directly.
This will help us with further development and future efforts to improve post-diagnostic support for people in the 12-months following a dementia diagnosis.
Take the Evaluation Survey
Thank you in advance for your time!

Interviews for people with dementia and supporters


We would like the opportunity to discuss and understand your experiences of the Forward with Dementia program in more detail, and to understand how the project may have changed your knowledge, attitudes and behaviours related to dementia and dementia care
  • Interviews are online or by phone, they are confidential and will be conducted by an experienced university researcher. Interviews will take about 30-45 minutes.
  • Register for an interview by emailing forwardwithdementia@unsw.edu.au and our team will contact you to discuss.

Need more information?


Read About Us or email forwardwithdementia@unsw.edu.au or leave a message on Tel: (02) 9065 7307.

You can also follow us on Facebook, Twitter and YouTube (see links at the bottom of this email).

Forward with Dementia is part of the COGNISANCE project. The project was awarded by the European Union Joint Program on Neurodegenerative Disorders and in Australia is funded by the National Health and Medical Research Council.

This project has been approved by the UNSW Human Research Ethics Committee. Project number HC210566 and HC 210308.

Wishing all our subscribers and supporters the
very best for the festive season and a
happy and healthy year in 2022! 
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Copyright © 2021 Cognisance. All rights reserved.

Our mailing address is:
Centre for Healthy Brain Ageing (CHeBA)
UNSW Medicine, School of Psychiatry
Room 305, Level 3, AGSM (G27)
Gate 11, Botany Street NSW 2052 AUSTRALIA

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