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Celebrating rare individuals
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CPFF has launched its Rare Disease Campaign featuring a new documentary Breathless for Change and the chance to share stories and honour rare individuals through tribute or memorial donations.
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We are all unique individuals tied together by our dedication to a better life for people living with pulmonary fibrosis (PF). We each deal with the challenges of living with this life-changing disease or caring for a person with PF with courage, resiliency and compassion.
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Creating universal blood-type organs for transplant
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Researchers at UHN proved it is possible to convert blood type safely in donor organs intended for transplantation, potentially removing the need to match blood types for lung recipients.
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You may not have to wait as long for a lung transplant following the promising results of a recent “proof-of-concept” study into creating universal type O blood lungs. Researchers at UHN (University Health Network) in Toronto proved it is possible to convert blood type safely in donor organs intended for transplantation.
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U of C developing a universal questionnaire to identify inhaled exposure risks
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Dr. Kerri Johannson is leading a project at the University of Calgary to build a universal questionnaire to identify inhaled exposures for pulmonary fibrosis.
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An 18-month, four-stage, research project is now underway at the University of Calgary to build a universal questionnaire that can be used by clinicians with patients to identify inhaled environmental and occupational risk factors for pulmonary fibrosis.
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CPFF provides input to advisory panel for potential pan-Canadian formulary
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CPFF has provided CADTH, a federal agency, with feedback on early work on a pan-Canadian prescription drug list.
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In July 2021, CADTH (Canadian Agency for Drugs and Technologies in Health) convened an advisory panel to provide Health Canada with a recommended framework for developing a potential pan-Canadian prescription drug list or formulary.
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Safeguarding your mental wellness under shifting tides
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A recent UHN (University Health Network) video offers advice on safeguarding your mental wellness during changing times.
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That’s the title of the February 10, 2022, edition of the COVID-19 Virtual Q&A series of videos produced by UHN (University Health Network) Foundation in Toronto. Moderated by Christian Cote, this video features Dr. Susan Abbey, Psychiatrist -in-Chief and Dr. Alon Vaisman, infection control physician, both of UHN.
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New resource for those referred for lung transplant
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Dr. Marco Mura has written a brief manual to help pulmonary fibrosis patients and their caregivers navigate the transition of care as they await a lung transplant.
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Dr. Marco Mura, staff respirologist, Western University and London Health Science Centre, has written a manual in lay language to help pulmonary fibrosis patients and their caregivers, navigate the transition of care as they await a lung transplant.
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