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Understanding the Emotional Well-Being of Family Caregivers of
Children with Medical Complexities
Tuesday, April 19, 3:00 p.m. EST
Learn More and Register
Family caregivers of children with medical complexity (CMC) are responsible for providing and arranging the majority of their child's care with inadequate support from health care systems. How CMC caregivers' experiences impact their emotional well-being is under-described. In this talk, we will review the existing literature, our team's current research, and plans for next steps to improve the health and well-being of this critical caregiver population,
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PPCC (Pediatric Palliative Care Coalition), GIPPCC (Greater Illinois Pediatric Palliative Care Coalition), CHPCC (Children’s Hospice & Palliative Care Coalition of California), and the CSU Shiley Haynes Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence.
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North Star Reach Camp is Back Open!
After two years of the pandemic and suspended in-person camp programming, North Star Camp has reopened!
Children with serious health challenges and their families were especially impacted during the pandemic.. The safeguards that were meant to keep everyone safe have also left these children and families feeling isolated, alone, and even outcast. While we are now seeing the world making strides toward a post-pandemic society, those same families remain cautious about returning to the routines everyone else has been anxiously waiting for.
Camp is a place of community, connection, and inclusiveness. A place where families know that their child’s safety is first and foremost. A place where kids with serious health challenges can just be kids. This is a truly welcome change from their recent experiences. But you already knew that because you have been an important part of spreading the word and connecting kids and families to North Star Reach.
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CPCC works to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child.
Your continued support of our mission is extremely important. Please consider making a donation - thank you!
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