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THC Wrap Up


17 September 2020

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This week is Disability Action Week. With the theme ‘Access-ability — making things better for everyone’, it highlights the benefits of improved accessibility, not only for people with disability, but also for the whole community. We all benefit when the communities where we live, work, learn and play are inclusive and provide opportunities for everyone to participate and fulfil their potential.

Disability Action Week is all about acknowledging the contribution that people with disability make in our state, raising awareness of disability issues, & improving access and inclusion throughout the wider community. With a vision for an all abilities Queensland, this years theme explores key areas of everyday life, with access-ability in transport, communication, building design and lifelong learning. These key areas align with the work of The Hopkins Centre and our vision to value the voice of people with disabilities in all decision-making and discovery. Everybody has a role to play in creating an inclusive accessible community for all.

The last couple of weeks have been action-packed, with important dates creating awareness for spinal cord injury, stroke, brain injury, and this week, Disability Action Week. These are national initiatives focused on empowering people with disability, raising the profile of disability and describing the impact it has on the lives of people and their families or friends. With 1 in 5 Queenslanders having a disability, most Queenslanders will have been touched by one of these conditions in some way or will be in the future. Sometimes, we forget what an important issue we are focused on.

Take the time to connect to our website, social media and share our important stories and research in these areas. Spreading our message is one important way our research is going to have the impact we need to see - supporting bold ideas that translate into better solutions for people with disability and their families and friends.

Stay up to date with our research projects, researchers and partnerships via www.hopkinscentre.edu.au on twitter @hopkins_centre​​.

Professor Elizabeth Kendall​ 

Griffith Inclusive Futures: Imagine Big

THC has joined other world-class research centres at Griffith to form an interdisciplinary alliance dedicated to building an inclusive future for people of all abilities.

Help us imagine big and plan boldly for an 
inclusive future where all people can be their best.
Share your thoughts on what might be the biggest challenges to be solved in the future. 

Shouldn't your opinion influence the next generation of research?


REMINDER - HOPKINS HOUR - TODAY, Thursday 17 September 2020 at 12.30pm.



Hopkins Hour Snack Pack

For those who may have missed any of our recent virtual Hopkins Hour events,
you can view the video recording and accessible event resources shared on our
website.
Hopkins Hour - 20 May 2020 - The Dignity Project
Hopkins Hour - 18 June 2020 - 'If not just mix and frequency, what else?' Factors that influence outcome after brain injury.
Hopkins Hour - 23 July 2020 - Virtual Reality for Chronic Pain: From low back pain to spinal cord injury-related neuropathic pain'.
Hear from health practitioners, clinicians, researchers and industry experts about the impact of pandemic events during 2020 on rehabilitation systems, services, connections and community. Each session will showcase a different perspective on disruption and adaptation in rehabilitation and designing resilient systems and responsive services, advancing technology, creating adaptive practices and interventions for the future.

Research session one - Wednesday 4 November at 1.30pm

Practitioners' perspectives on system and service disruption across the continuum of care and importantly, experiences and ideas about how technology can solve problems and accelerate positive change in the delivery and design of rehabilitation.

Research session two - Wednesday 11 November at 4.00pm
Panel Discussion with experts, advocates and future thinkers on a new generation and vision for rehabilitation and what inclusive, adaptable and resilient rehabilitation systems could look like into the future. 

Research session three - Wednesday 18 November at 1.30pm

Citizen focus on resilience, rights, and consumer centred community during system disruption.
 
Please save these dates in your calendar, with more details coming very shortly.
During this Disability Action Week, All Abilities Queensland, shares a series of podcasts, exploring what accessibility
means, why it is so vital in important aspects of our lives, and the positive outcomes for everyone to be gained by
making our communities more inclusive and accessible.

Listen to Hopkins Centre Patron and Ambassador,
Kevin Cocks AM, talk about accessibility how far we’ve
come in building an accessible transport network in
Queensland and where we go next. 
Click here to listen


We are excited to announce that The Hopkins Centre
 Ambassador Tim McCallum, a talented singer
and Spinal Life Australia Peer Support Officer,
has been chosen to perform the national anthem at
the AFL Grand Final in Queensland on Saturday 24
October. The announcement was made last week and Tim told AFL news, that it was his dream to sing the national anthem at the AFL Grand Final, and the fact
I can do this in front of my home crowd at the Gabba
just makes the occasion even more special. He said,
 "I want my performance to show people out there –
no matter what obstacles life throws at you - that
you too can be centre-stage."


Read more here


   We are proud share Ambassador Belinda Adams short
   documentary called 'See Me for Who I Am'. This was
   submitted to the Focus On Ability Film Festival and you
   can now view this film and others that have been
   submitted. Voting is now open until September 21st, so  
   we encourage you to view this film and vote accordingly
   if you are inspired by Olivia Hargroder story and her journey
   in conquering her dreams.

   Click here to view film


Congratulations to Hopkins Ambassador and
researcher Dr Dinesh Palipana OAM in his admission
to the Supreme Court of Queensland as a lawyer. Dinesh has overcome great adversity to become a doctor and now a lawyer. He is an inspiration to us
all and we congratulate him on this fabulous achievement.


Read more here 


 
  Angel Dixon, a Hopkins Centre Ambassador and Dignity
  Project citizen researcher shares her story recently for Spinal
  Cord Injury Awareness week and Stroke week. Take the time to
  read her story and think about the way we talk about 
  disability, impairment and the huge impact that it has on the
  daily lives of the people that live with it. 
One great way to
  connect, learn and partake in research
is through the
  Dignity Project Community Hub .


  Read more here

Enabled.vip is building toward constructive change
Disability and chronic illness doesn’t dictate potential, curiosity or passion
www.enabled.vip 

It is almost impossible not to get excited about what’s going on with Enabled.vip at the moment. The not-for-profit now has a five person Board, led by Chairperson Gerard Nelson and The Hopkins Centre Ambassador Dr Gary Allen as CEO. Already built (using personal contributions and contributions from friends and family) is the Resource Library and the blog. Recently produce are tip sheets about taking your hobby to the next level and producing your first ebook. The team has started organising presenters for the webinars that will be held every month. Around two hundred resources have already been identified for the Resource Library.

The team has been busily applying for grants, so the build can be finished, to allow the pilot trial with ten Queenslanders to commence. They are currently trying to lock in a business partner that would facilitate landing a Queensland government grant. Enabled.vip have also started the ball rolling to register with the NDIS and are making arrangements, so Griffith Business School micro courses can be offered to clients. These grants and partner collaborators would allow Enabled.vip to offer some clients scholarships to assist with costs such as logo creation, web and email setup.


THC researcher Professor Heidi Zeeman is excited to be part of the NOVELL redesign collaborative project team, reimagining stroke rehabilitation environments and optimising stroke rehabilitation through design, with the new evidence-based ‘living lab’ study.

The NOVELL Redesign project recently launched in line with National Stroke Week, as a collaboration between The Florey Institute of Neuroscience and Mental Health, Swinburne University of Technology, and The Hopkins Centre, Griffith University. 
NOVELL Redesign is an evidence-based research project that is aiming to revolutionise the design of stroke rehabilitation environments. NOVELL, or the Neuroscience Optimised Virtual Environment Living Lab, will transform stroke rehabilitation environments to optimise outcomes for users of rehabilitation facilities, including patients, visitors, and staff.

Professor Zeeman shares, “The NOVELL Redesign project is the first of its kind in Australia and is working to create what is an ideal rehabilitation environment.”
 “The project addresses the lack of evidence-based design in stroke rehabilitation environments and in healthcare more generally, while also recognising a need to use contemporary neuroscience evidence in this area.” 


For more information, please visit the project website:
 www.novellredesign.com.



The Dignity Project has released its Values and Commitment Statement!

We encourage everyone to read the Values and Commitment Statement and think about how it can be adapted and implemented in your own research, working towards more accessible and inclusive spaces and practices.

The Values and Commitment Statement was designed to provide operational guidance and transparency for The Dignity Project research team, as well as other researchers and research projects. Created by people with and without disability, the definitions, values, frameworks and commitments outlined by the Values and Commitment Statement are a result of the preliminary work of the Dignity Project Pilot.

To read or download the statement, visit 
www.hopkinscentre.edu.au/valuesandcommitmentstatement

    

A very Hopkins PhD! We’re thrilled to announce that Delena Amster, a key member of the Hopkins team, who has provided substantial foundational guidance for THC over the years, has just been awarded her PhD. What a great achievement!

Delena’s thesis topic was ‘What are the determinants of participation in life for people with spinal cord injury, and how might a knowledge of these determinants enhance rehabilitation?’ While the research for her thesis preceded THC, the issues that Delena explored are emblematic of The Hopkins Centre interests and focus, and her strongly collaborative and participatory approach is also core to THC values.

Delena’s PhD supervisors were THC team members, Assoc. Prof. Melissa Kendall and Assoc. Prof. Pim Kuipers. Also, in true Hopkins Centre style, Delena achieved the Award of Excellence in a Research Thesis! With her examiners unanimous on the significance of her work and its contribution to the field. That means Delena is now a strong contender for next year’s Chancellor's Medal for Excellence in the PhD Thesis for 2020.

Please congratulate Dr Delena Amsters!

          
    
Congratulations to another of our fabulous Hopkins Centre PhD Candidates, 
Leda Barnett, in her recent PhD submission on 1 September 2020! What a great achievement and we can't wait to hear more about her research on 'First Australian Holistic Health: Development of a Multi-Dimensional Model of Suicidal Ideation and Suicide-Related Behaviours'.

Leda is a First Australian Psychologist who recently submitted her PhD dissertation, with her dissertation a result of working in partnership with Mackay's First Australian community to develop a better understanding of First Australian suicidal ideation and suicide-related behaviours. To analyse participants experiences of suicidal ideation and suicide-related behaviours, a data analysis matrix incorporating Ecological Theory, a First Australian perspective on holistic health and the dimensions of time, space and distance enabled analysis from multiple perspectives. The result was the Empowerment to Prevent Suicidality (EPS) Model that depicts the participants experiences of suicidal ideation and suicide-related behaviours. The EPS Model emphasises the social and spatial nature of suicidality that is located in the interpersonal environment and places that have most meaning to people. Furthermore, interventions must focus on strategies for faciliating empowerment at crucial points in time by recognising and respecting the social and spatial nature of suicidality rather than focusing on individual mental health conditions. Stay tuned for a project update coming soon...


Get involved, participate and share our current THC research surveys

Making complex interfaces work for the NDIS

The Hopkins Centre, Griffith University is conducing a short online survey asking NDIS participants about the coordination of their NDIS funded plans. The survey is open to individuals, or family and guardians of individuals, who are currently receiving a NDIS funded plan.

 This survey aims to learn about your NDIS plan and what is or isn’t working well and should take around 5 minutes to complete. If you’d like to provide feedback about your NDIS plan, press control and click on the link below.

 Online survey link: Tell us about planning your NDIS supports

If you have any questions about this research or have more to say on this topic (we are conducting interviews with eligible individuals from South-East Queensland), we are keen to hear about your person experience of the NDIS through an interview. You can contact Eloise Hummell (project manager) via email at e.hummell@griffith.edu.au
 



Last week, Affiliate Partner Spinal Life Australia, kicked off Spinal Cord Injury Awareness Week #SCIAWhighlighting an important message: Accessibility equals opportunity.

Throughout the week, Spinal Life Australia shared stories from their members on what accessibility means to them and improvements that can be made. Carol Taylor led the way talking about how important it is to have accessibility for all within the community.
Click here to watch Carol's story.


It’s not just about physically being able to access venues and services – it’s also about ensuring all venues and services provide comprehensive, accurate accessibility information that can be found quickly and easily. By improving accessibility in Australia, we can provide people with spinal cord injuries and other physical disabilities a greater opportunity to participate and contribute to their local communities. Ensuring accessibility information is readily available also empowers people to make informed decisions about the places they visit. As businesses and tourism destinations recover from the impact of COVID-19, it’s more important than ever to provide people with spinal cord injuries the ability to contribute to their local economies.

When a community is accessible, everybody wins.


To find out more, visit https://www.spinal.com.au/awarenessweek/ 
and take a few minutes to think about what that means to 15,000 Australians living with a spinal cord injury and the 300 people who will sustain a life changing spinal cord injury this year.



Learn more about the THC research study featured in Affiliate Partner RACQ Road Ahead magazine.
Led by Professor Louise Gustafsson, this study aims to identify and find solutions to the challenges people with stroke, traumatic brain injury and spinal injury face when travelling. 
Click here to read the article                   Click here to participate in study


A free online event organised by Queenslanders with Disability Network in recognition of Disability Action Week. ‘Mind the Gap: bridging the disability digital divide’ is a free virtual event looking at innovative ways to close the digital divide for all people with disability, across all areas of their lives. Register Here.


Seminars & Workshops


NEW National Disability Strategy: Beyond 2020
Thursday, September 24, from 1pm-3pm 

NEW Researcher Education and Development: External Research Dataset Taster
Tuesday September 29, 10am - 12.30pm

NEW Researcher Education and Development: Managing your Research data 
Wednesday October 14, 10am - 11.30am

NEW Research Education and Development: How to succeed at the ARC Linkage Projects scheme workshop
Tuesday 22 October, 12.00 – 1.30 pm


DSC Individual living options (ILO) workshop series 
Thursday October 22, 10.30am - 2.30pm 


Office for Research Online Drop-in Sessions
Fortnightly Thursdays at 10am on the Microsoft Teams platform
Click this link to join Microsoft Teams Meeting


Online Disability Awareness Training
Improve your disability awareness with this new online training
Online, anytime
HERE


Researcher Education and Development (RED): Endnote Workshop
Registrants to be sent a video recording, worksheets and documents


Future Learn brings a collection of FREE online courses to keep you busy whilst in isolation.
Course collection HERE
Virtual COVID-19 course HERE


Hacky Hour - Research related IT assistance
Every Thursday 2pm - Virtual consults via the website 
More information
HERE


Conferences 

NEW 10th Annual Australian Healthcare Week Expo
March 17 - 18 2021, International Convention Centre, Sydney 


NEW Australian Research Data Commons (ARDC): ARDC's Australian eResearch and Data Skills Summit 2020
26 - 30 October 2020, Virtual Summit

NEW Gold Coast Health Research, Quality and Innovation Week – call for Lightning Talk abstracts
16 - 20 November 2020, Online Sessions 

Call for Abstracts now open 

Change 2020 
Commencing 17 September 2020, FREE online 


The Inaugural Herston Health Precinct Symposium 2020  
7-11 December 2020, Royal Brisbane and Women's Hospital 
Call for Abstracts now open 


2020 International Conference on Robotics and Automation
The conference will unfold fully online. All technical papers are featured with 5 to 10 minutes presentation videos supplied by authors. 


ARCS Australia: Upcoming webinars
ARCS Australia continue to bring you interesting and informative webinars on a range of health related topics.

AHHA Webinars, Workshops and Training
An array of free online short courses, workshops and a unique webinar series are currently being offered by AHHA across various dates and leading into 2021. 


The National Conference for the Disability Sector 
 25 - 26 November 2020, International Convention Centre Sydney 


Rehabilitation Medicine Society of Australia and New Zealand (RMSANZ)
22-25 September 2020, Gold Coast Convention and Exhibition Centre, QLD

ANZSWWER Symposium 2020 - Social Work in a Climate of Change

November 18,19 & 20 2020

8th National Brain Injury Conference by Brain Injury Australia
23-25 November 2020, The University of Sydney, NSW
Call for papers now open and due by 7 August 2020
NEW Therapeutic Innovation Australia: Pipeline Accelerator 2020-21 round 1, now open
Applications close 31 October 

NEW MRFF Research Grant Opportunities 
Various dates for 2020

NEW ARC Discovery and ARC Discovery Indigenous Grant Development
Applications now open 

The Innovative Manufacturing Cooperative Research Centre (IMCRC)
Applications ongoing 

 SAX Institute Research Action Awards 2020
Applications now open 

2021 Metro South Health Research Support Scheme 
 Extended and applications close 17 September 2020

Special Grant Round COVID -19
The Emergency Medicine Foundation is inviting Expressions of Interest from eligible Qld emergency clinicians for research into novel coronavirus infection

Updated NHMRC Grant Opportunities 2020
Investigator Grants
Development Grants
Centres of Research Excellence 
Synergy Grants
(cancelled)
CTCS Grants 
Ideas Grants


 Heart Foundation Research Program dates and guidelines for 2020
Various dates for 2020



Keep informed of the latest opportunities with these research funding websites
Griffith University Office for Research grants calendar and internal grants
*Australian Trade and Investment Commission: Austrade
*Queensland Health research funding website
*Australian Government GrantConnect
*Research Professional's research funding website
Virtual Reality Body Image Training for Chronic Low Back Pain: A Single Case Report
Daniel S. Harvie, Ebonie Rio, Ross T. Smith, Nick Olthof, and Michel W. Coppieters

Evaluating the effectiveness of on‐road driving remediation following acquired brain injury: A wait‐list feasibility study with follow‐up 
Louise Bassingthwaighte, Janelle Griffin, Jennifer Fleming, Louise Gustafsson

Understanding people’s experiences of using the SaeboFlex® following a stroke
Hayley Millard, Louise Gustafsson, Matthew Molineux, Katherine Richards


Exercise & Sports Science Australia (ESSA) position statement on exercise and chronic obstructive pulmonary disease
Norman. R.Morris & Kylie Hill, James Walsh, Surendran Sabapathy


System and method for treating and monitoring Post Traumatic Stress Disorder (PTSD)
Mountford, Carolyn; Crompton, David; Tosh, Nathan; Tremewan, Rosanna


“She’ll be right, mate!”: do Australians take their health for granted?
Paul Harris, Asiyeh Salehi, Elizabeth Kendall, Jennifer Whitty, Andrew Wilson & Paul Scuffham


Role-based goal planning: A new approach to enhance participation of rehabilitation patients with severe acquired brain injury
 Pick, Valerie; Douglas, David; New, Alison; Libera, Marilia; Burridge, Letitia

Call to increase statistical collaboration in sports science, sport and exercise medicine and sports physiotherapy

Sainani KL, Borg DN, Caldwell AR, et al

Dylan Alcott OAM and Angus O’Loughlin talks with Dinesh Palipana on ListenABLE driving a powerful but natural conversation. ListenABLE is a brilliant podcast talking about real issues with people who have lived experiences. Click here to listen to the podcast.

Listen to Officer Billy Hedderman's on ABC conversations talk about his extraordinary journey, coming back from a horrific accident which left him paralysed, to running a 10km race, in under seven months.
Click here to listen. 
His new book details his accident, and everything that came after. Click here to read his book.
            

Australian Human Rights Commission released guidelines for health and disability workers supporting people with disability during the COVID19 pandemic. Click here to download.



NHMRC has released their Corporate Plan, covering the next four years, 2019-20 to 2022-24. It identifies the major health issues for this period, how we will deal with these issues and a strategy for medical research and public health research, in line with the requirements of the NHMRC Act. Click here to view.




Call for chapters for Handbook on Disability Policy, applying a human rights lens. We encourage contributions from people with disability, policy makers, practitioners and academics.
Click here to see details.


Microsoft leader: How to embark on your disability inclusion journey
https://lnkd.in/eVRQJ2e
 


Nance Haxton's latest interviews: Listen HERE 


Forces for change - 7 ways to build a more accessible and inclusive workplace
More than 250 professionals from 120 leading organisations came together for the Australian Network on Disability Conference in May to discuss the forces that are driving organisations to be more accessible and inclusive. Seven key forces were highlighted as contributing to positive change and sustainable progress.
Find out 
 7 ways to build a more accessible and inclusive workplace



Cochrane is for anyone who is interested in using high-quality information to make health decisions
Whether you are a doctor or nurse, patient or carer, researcher or funder, Cochrane evidence provides a powerful tool to enhance your healthcare knowledge and decision making.

Join today.

 
This month, September is International #PainAwarenessMonth, and as every year, the focus needs to be people living with chronic pain. Click here for learn more.



Last week was R U OK Day. 2020 has been a challenging year for us all and highlighted the importance of staying connected with friends, family and work mates. Remember to set aside time for self-care and check in with your loved ones. A conversation can make all the difference.




It is important to raise awareness about the F.A.S.T. signs of stroke, to equip more people with the knowledge to be a F.A.S.T. heroes. Face.Arms.Speech.Time. HERO!! Across Australia, F.A.S.T. Heroes can save lives, simply by knowing and recognising the F.A.S.T. (Face, Arms, Speech, Time) signs of stroke and calling an ambulance immediately. They know that stroke is always a medical emergency and time is critical. https://bit.ly/StrokeWeek2020
PREVIOUS EDITIONS OF THC WRAP UP ARE AVAILABLE VIA THE WEBSITE

Please remember if you would like us to showcase your publication or project updates please email through to hopkinscentre@griffith.edu.au by Wednesday of each week.


Please also send through any media you may have to hopkinscentre@griffith.edu.au
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