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National Voices Members' Update: 03 September 2020

National Voices Autumn programme: it’s time to Rebuild For All 

Dear <<First Name>>,


During the peak of the COVID-19 outbreak, it sometimes felt that the virus really was the only thing going on. But as we all know, life with other health and care concerns, conditions such as dementia, depression, diabetes and many more chronic issues, continued.  

Now, health and care leaders are attempting to reconnect people with ongoing health problems to the clinical support they need, at the same time as managing COVID-19.   

We are concerned that one way of dealing with this overwhelming complexity might be to reconfigure the NHS as an emergency service only, a ‘bare minimum’ health service. But this will leave people behind and miss real opportunities to rethink how we design and deliver care: closer to people’s homes, in partnership with communities, focused on what actually helps people cope.  

With this in mind, we have shaped an Autumn programme under the banner Rebuild For All. We know that we won’t get any of this right if we don’t start with the users of health and care services themselves.  

Rebuild For All will see us deliver our long-awaited report into the roll-out of social prescribing; we will run workshops in October and November focused on improving patient and service user input into service design; we will publish our Our Covid Voices report with first-hand stories of people’s experiences of health and care in lockdown; we will also report on our look into people’s experiences of waiting for health and care services and treatments. 

All these ideas and arguments build up a picture of how we need to reconfigure care at the human scale – listening to what people say they need and focusing on the lives we actually live, not the conditions we have.  

This will be a busy and important time for all of us and it would be great to hear your views and get you involved as we go along in what is an amazing opportunity to shape support that truly focuses on the needs of the person. 


Best wishes,

Charlotte Augst


Chief Executive
charlotte.augst@nationalvoices.org.uk

Recommendations for continued care and support of people who are clinically extremely vulnerable

Last month we signed a Royal College of Physicians shared statement along with a number of other royal colleges and organisations, which highlighted the challenges faced by both doctors and patients in identifying and reducing the risks associated with COVID-19 for those who are clinically extremely vulnerable. We made recommendations for the Government, the chief medical officers and NHS bodies on shielding and delivery of care for those deemed to be at high risk. 

Peer support should feature more in Government's new obesity strategy

Rethink Mental Illness have sent us a briefing in response to the new Government's new obesity strategy. They broadly welcome the strategy but are disappointed that it did not recognise the role of mental illness in weight gain or managing a healthy weight. People with severe mental illness die on average 15-20 years younger than the general population, largely due to preventable physical health problems. They hope the Government will look at the role of peer support as part of what GPs might prescribe to support weight loss and look to include some of these learnings in resources produced for the Better Health campaign.
We are pleased to welcome two new members

Centre for Mental Health is a charity with over 30 years’ experience in providing life changing research, economic analysis and policy influence in mental health. Over the last decade, their work has expanded to include physical health, wellbeing, inequality and multiple disadvantage across the life course.
Yorkshire Cancer Community is a forum of patients, carers, family and friends affected by cancer in Yorkshire. They have an important part to play in making a difference in how cancer services are designed, developed and delivered. Their aim is to be a supportive forum for cancer patients and carer groups across the area to share experience, successful approaches and good practice. 
Independent Age still looking to hear how COVID-19 has affected people over 65

Independent Age is still looking to hear from people over 65 on how COVID-19 has impacted their everyday life over the last few months. They heard from thousands of people in March about their experiences and would like to understand how things have changed since then. This will enable them to ensure that they are accurately representing people’s priorities when we are talking to the government about improving support. Please share or fill out their survey

Rare Disease Calendar Photography Competition

Same But Different has launched a new calendar photography competition – Glimmer of Hope!'Glimmer of Hope' is an opportunity to visually express the hope that exists for people with rare diseases. Winning entries will be used to create a calendar that will raise awareness of rare diseases. You can find further details of the competition and links to submit your photographs on their website. Deadline for submissions is 22 September.

Yellow Card Virtual Workshop

Medicines & Healthcare products Regulatory Agency (MHRA) would like to involve patients and the public in further improving their services for reporting side effects and problems associated with medicines and medical devices to the MHRA via their Yellow Card scheme. They are holding two workshops for anyone who has no experience of using the Yellow Card Scheme or previous interaction with MHRA.
There is a choice to register to two different dates on their Eventbrite page:

  • Tuesday, 8 September 2020 - 12:00 pm – 2:00 pm (Deadline to register Sunday, 6 September 2020)
  • Wednesday, 16 September 2020 - 10:00 am – 12:00 pm (Deadline to register Monday, 14 September 2020)

Social Prescribing report launch webinar

Wednesday 9 July
10:00 am - 11:30 am
We will be launching our new report, 'Rolling Out Social Prescribing - understanding the experience of the voluntary, community and social enterprise sector'. The Conservation Volunteers (TCV) will also be launching their social prescribing report How Do We Sustain Social Prescribing In The Wake of Covid-19?.
The panel of speakers:
  • James Sanderson, Director of Personalised Care at NHS England and Improvement
  • Craig Lister, Managing Director of TCV's Green Gym
  • Sajid Hashmi MBE, Chair of the Bury Voluntary, Community and Faith Alliance
  • Kate Jopling, National Voices' Associate, who was closely involved in our social prescribing workshops.
Please register via our Eventbrite page to receive joining details. 

We'll be uploading a recording of this webinar on our YouTube channelwhere you can also find all of our previous webinar recordings. 
In this week's blog, Charlotte Augst writes about what we have planned ahead in the National Voices Autumn programme: it’s time to Rebuild For All
Thank you,
National Voices
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