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Zoom Meeting Scheduled every Tuesday at 7pm! ID and password stay the same each week. https://us02web.zoom.us/j/5672661911?pwd=UEJMZDBNZ0h2K20xNnl2aFVMSUVZZz09

Meeting ID: 567 266 1911 Password: 123456
One tap mobile +19292056099,,5672661911#,,#,123456# US (New York)
Our Next Meeting
October 27th
Back by popular demand "Q & A with Dr. Meytin"
 
Ask the Doctor with Leon Meytin, MD
Dr. Leon Meytin, Movement Disorders Neurologist, has joined the Chase Family Movement Disorders Center and will be seeing patients in Stamford, CT. His background includes a fellowship at Mount Sinai Beth Israel in New York and Neurology Residency at Thomas Jefferson University in Philadelphia. He has experience with a multitude of common and unique conditions including Parkinson’s disease, Atypical Parkinsonism, Dystonia, Ataxia, Tics, Essential Tremor and more. He has been involved with several clinical trials and clinical research.
This is an opportunity to welcome and meet Dr. Meytin and ask any question you would like. You may also submit your questions in advance to susan.lather@hhchealth.org if you prefer.

Scheduled for October & November


We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
November 3rd.
Care Partner Support Group

November 10th 
Brian Kopell, MD 
Professor of Neurosurgery, Neurology, Psychiatry. and Neuroscience as well as Director of the Center of Neuromodulation at the Mount Sinai Health System. New brain sensing device for PD "Percept Neurostimulator" and Longevity Medicine for PD.

November 17th.
Support Group for PD
November 24th.
No Meeting (Thanksgiving Holiday)
December 1st.
Care Partner Support Group
December 8th.
TBD
December 15th.
PD Support
December 22nd.
No Meeting
December 29th.
No Meeting (Holiday)
Parkinson’s Body and Mind Program
Revised COVID Safe
 Greenwich YMCA 

 
The Parkinson's Body & Mind Program is back at the Greenwich YMCA. Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

 
Wednesday:      Boxing w/ Heather @ 10:00am
Friday:               Yoga w/ Francesca @ 10:00am
 
Wellness classes will be LIVE in the YMCA with a maximum capacity of 10 participants indoors. Also, we have set up our Zoom cart in order to livestream all the classes.

Registration
All participants must register for the class via the YMCA of Greenwich App click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.


PD Body & Mind Program Pass .
Instead of a per/class fee, this is a monthly PD Body and Mind Program Pass which provides the following benefits:
  • All participants will be considered members of the YMCA of Greenwich and will receive all of our communications.  
  • Full, unlimited access to all PD programs (classes, support groups, Y-events).  Program Pass holders also have full access to our facility.
  • Greater connection w/ members of the group the event of class cancellations, facility alerts, or otherwise.  
  • The ability to easily freeze the ongoing monthly fee due to travel, schedules, etc.   
  • Zero joiner fees that would normally come with a membership. 
The PD Body & Mind Program Pass is set up at $49/month.  there may be some participants for whom this fee is not reasonable. We will set up a separate fund whereby others can donate an additional amount/month to cover these gaps. Also, as we do for all our members, we offer a sliding scale program for membership and program fees.

We are very excited to get this program going again through the YMCA!

Rock Steady Boxing Class
Mondays at 10 AM
Roger Sherman Baldwin Park
100 Arch St Greenwich
Toni Mafes received her certification in Rock Steady Boxing for Parkinson’s disease back in 2017.  She  is the head coach of RSB at Belmars gym in White Plains NY.  
  
In 2006, Toni fought in the NY Daily News Golden Gloves, 
 
She worked with many athletes of all ages and abilities. I've coached cheerleading for ages 3- 21 years of age, done strength and conditioning for gymnasts and been teaching boxing /muay thai for the last 15 years. 
 
"It has always been great to work with people on their personal fitness goals but Rock Steady Boxing offered an opportunity to work with people who were fighting for their lives. 
 
"My Rock Steady Boxers are the hardest working people I have ever worked with." 
 
Rock Steady is different from other boxing classes because we are catered to the needs of people with PD. Boxing itself offers great benefits (coordination, strength, fitness, bone density, stress management) Rock Steady adds vocalization, balance, fine motor, dexterity, cognitive functions- just to name a few.  

Roger Sherman Baldwin Park
100 Arch St Greenwich
(Right off I-95, plenty of Parking and there is a porta potty)

Toni's Venmo for those who would like to pay for the class or bring cash. Suggested amount is at least $10 per class. 

If interested in attending the class please email Lynn at hagerbrant@gmail.com
Tai Chi/Qigong Class for PD 
Tuesdays at 11:00 AM
New Location
Cos Cob Park.
22 Sound Shore Dr. 
Greenwich, CT

 
Beautiful location with a gazebo overlooking the water. Click here for driving directions. 

Ken began studying TaiChi/Qigong in 1996. He has been teaching regularly scheduled TaiChi/Qigong classes in the Stamford-Greenwich area for 13 years as well as private sessions. He also co-teaches a stress management class at the Bennett Cancer Center. His classes emphasize relaxing with focused breathing and coordinated movement.
 
Studies have shown that TaiChi improves balance and motor control in Parkinson”s disease. 


No charge for trying out a class! For those who want to pay, suggested amount is at least $10 per class. 

If interested in attending please email Lynn at hagerbrant@gmail.com

Francesca Conway's Yoga for Parkinson's Tuesday and Thursday
at 10 AM  


Zoom https://us04web.zoom.us/j/522704679pwd=S092bmlLVXEzRWR1UmZXb1d1eDBjZz09 
Meeting ID: 390 140 5312
Passcode: 321096


Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net

Ray Fructuoso online workout classes Wednesdays and Fridays at 2PM

Join us on Wednesdays and Fridays at 2:00 PM on Zoom. 
Just go to the following link on your iPhone, laptop or desktop.
Click https://us04web.zoom.us/j/7064312737 to start or join a scheduled Zoom meeting.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888

Ray's YouTube videos are available in the Shakers Anonymous video library https://www.shakersanonymous.org/help-videos

Dear Friend,

As a valued supporter of The Michael J. Fox Foundation (MJFF), you’re one of the first to receive a special invitation to our Virtual Research Roundtable on Tuesday, November 17 at 3 p.m. ET. While we can’t be together in person for this annual event, we hope you’ll join us online for the conferral of our major prizes and conversation on 20 years of research progress toward a cure.

We look forward to seeing you there.


P.S. Please feel free to share the registration link with your friends, family and local community members who may be interested in attending.

 
 
   
 
Parkinson's Foundation

Join us for Parkinson's Disease and Special Senses: Vision, Smell and Taste, a free online event for people with Parkinson’s and their loved ones. We will discuss how changes in vision, smell, or taste may present in a person with Parkinson's.
This program is open to people with Parkinson's, their family, friends and the community.
 

What:  Learn about the non-motor symptoms associated with Parkinson's and how to cope and live optimally with these changes.

Who: Our speakers include:
– Anna DePold Hohler, MD, FAAN, Movement Disorders Specialist at St. Elizabeth's Medical Center
– Okeanis E. Vaou, MD, Director of Movement Disorders and Deep Brain Stimulation at St. Elizabeth's Medical Center

When: Friday, November 6, 2020; 12 p.m. – 1 p.m. ET

Where: Online Zoom Meeting. Once registered, you'll receive an email giving you the link to watch the program on the date and time written above.

How to attend: RSVP now at parkinson.org/SpecialSenses. This is a free event, but registration is required.
For more information, contact Melody McLaughlin at (781) 552-3790 or NewEngland@parkinson.org
Meeting Your Nutrition Needs: NYP Nutrition and the PD Care Team
By Shoshana Genack, MS, RD, CDN, CDE and Debra Katz, MPH, RD Clinical Nutritionists at New York Presbyterian

“Let Food Be Thy Medicine and Medicine Thy Food”
-Hippocrates

At New York Presbyterian outpatient registered dietitians/clinical nutritionists help patients identify what, when and how much to eat and drink to achieve their health-related goals. Our nutritionists are part of the Parkinson’s Disease care team.
There are many reasons why a patient with Parkinson’s may benefit from nutrition support and guidance: constipation, trouble swallowing, loss of appetite or weight loss or questions about food / drug interactions with the medications you need to take. Our approach is very individualized and working closely together with each patient we try to incorporate their food preferences to meet their own nutritional needs.
Our clinical nutritionists ‘meet’ our patients with Parkinson’s through video visits – in the comfort and convenience of their homes. How often you meet depends on what each patient and clinical nutritionist decide together will be most productive and beneficial: one visit may be enough to discuss general healthy eating; but follow up visits may be helpful to monitor progress in a patient who has weight loss. You are what you eat, good nutrition is our mission, amazing things happen when patients meet with a dietitian.

 
For an appointment please call:
622 West 168th Street
Vanderbilt Clinic - 10th Floor, Room 62
New York, NY 10032
Phone: (646) 317-4811
Email: ONPWest@nyp.org
Fax: (212) 746-9456

DEEP BRAIN STIMULATION (DBS) SUPPORT GROUP
 
Open to all who have had or are looking for information about DBS surgery for Parkinson’s disease, Tremor, or Dystonia. Columbia University Medical Center

VIRTUAL MEETING via ZOOM 

Join Zoom Meeting https://columbiacuimc.zoom.us/j/99092517327?pwd=QkM3S 0hBZ1hUL0NuVTU4bXkvNVJJUT09 

Meeting ID: 990 9251 7327 Passcode: 471335 
Meeting facilitated by Dr. Brett Youngerman (neurosurgeon),

Linda Winfield, RN, MPH Dr. Blair Ford, Dr. Kimberly Kwei and Elizabeth Delaney, LMSW. To RSVP, call Elizabeth Delaney (212)305-5779 or ad2179@cumc.columbia.edu
Please join us!   
Center Spotlight: NeuroNEXT Study, Light Therapy for Impaired Sleep in PD Division of Movement Disorders

What is this study?
We are doing this research study to find out if light therapy can help people with Parkinson’s disease (PD) who experience difficulties with their sleep. We also want to find out if light therapy is safe and does not cause too many side effects. We do not expect the natural progression of Parkinson’s Disease to change due to this study and it is not the target of the research.

What is involved?
If you decide to join this research study, the following things will happen: you will have a physical and neurological exam, answer questionnaires, complete sleep logs and light therapy sessions, and if you are a woman of child-bearing age you will have a urine pregnancy test. It will take you about 4 months to complete this research study. During this time, we will ask you to make 5 study visits to Weill Cornell Medical College and complete 3 phone calls.

Will I be paid to take part in this research study?
We will pay you $250 if you complete the study. If you do not complete the study, we will pay you $50 for each visit you complete. If I have questions, concerns or complaints about this research study, whom can I call?
You can call us with your questions or concerns. Our telephone numbers are listed below. Ask questions as often as you want. Harini Sarva, MD is the person in charge of this research study. You can call her at 212-746-2584. You can also call Gabrielle Auerbach at 212-746-2474 with questions about this research study. If you have questions about the scheduling of appointments or study visits, call Gabrielle Auerbach at 212-746-2474.

Columbia University
Irving Medical Center
710 West 168th Street
New York, NY 10032
212-305-1303
www.columbianeurology.org/patient-care/movementdisorders
“Don’t count the days, make the days count.”  -Muhammad Ali, diagnosed with PD in 1984
Fall 2020
PWP is a non-profit organization that promotes awareness, education and social interaction for people with Parkinson’s disease.
Here are some upcoming events and other resources from pWp:

STAY AT HOME SUNDAY: LEARN TOGETHER WHILE APART WEBINARS

-November 1, 2020 12:30-2:00PM
“Your PD A-Team” a panel discussion on the MultiDisciplinary Approach To Living Better With PD, presents speakers that span the disciplines of Movement Disorder Neurology, NeuroPsychology, and Social Work, as well as actual perspectives from family members.

-November 17, 2020 12:30-2:00PM
“Running Better: Understanding Your Gut” a discussion to delve deeper into the topic of Essential Nutrients according to your Conditions in PD and gastrointestinal dysfunction in PD. A short yoga demonstration to help keep you flowing will be included.
Learn more and register here: https://parkinsonswellnessproject.org/events
Physical Therapy and Parkinson's Panel with physical therapists Lee Dibble, Terry Ellis, and Gammon Earhart

If you’re living with Parkinson’s, a physical therapist (PT) is one of the most important people to have on your care team. A physical therapist can help you improve your balance and reduce your risk for falling, improve your ability to walk faster and further, increase your strength, and improve your overall quality of life. If you’re living with Parkinson’s, a physical therapist (PT) is one of the most important people to have on your care team. A physical therapist can help you improve your balance and reduce your risk for falling, improve your ability to walk faster and further, increase your strength, and improve your overall quality of life.
In this webinar, our panelists will answer the following:
  • The importance of seeing a physical therapist very soon after a Parkinson’s diagnosis 
  • The importance of aerobic, strength, and balance training when it comes to living well with Parkinson’s 
  • How physical therapy can help reduce pain and improve overall mobility 
  • How physical therapy can help with the non-motor symptoms of Parkinson’s 
  • How to track your progress over time
  • New research in the works that may help you live better longer 
  • Innovative therapies you can try at home
  • and more
If you’re unable to make it at the scheduled time, register anyway, and we’ll send you a recording as soon as it’s available.
 
Register for the webinar
 
 Stay Informed

As we gear up for the coming winter months, we're working to make sure that you have the best information on living well with Parkinson's for every aspect of your life. Join us to learn about Parkinson's Dyskinesia, why you should have a physical therapist on your care team, how to stay healthy as a Parkinson's care partner, and more. Read on to find out more about our upcoming webinars, including a webinar exploring the inequities in Parkinson's research. Plus, stay tuned for the announcement of an interview with renowned Yale professor and podcast host Laurie Santos.
 

Inequities in Parkinson's Research

 
Webinar: Health Disparities and Parkinson's: Inequities in Parkinson's Research
December 2, 2020, at 11 am MST

What happens when access to participation in Parkinson's research and the design of investigations neglects to consider a diverse audience? Join Dr. Jonathan Jackson and Dr. Nabila Dahodwala as we explore why diverse participation in research matters, what role research can play when it comes to changing equity and access to Parkinson’s care, and more.

Learn more and register today.

 More Upcoming Webinars

Physical Therapy and Parkinson's Panel
with Lee Dibble, Terry Ellis, and
Gammon Earhart

Monday, October 26   |    12 PM (MDT)
Click Here to Register

 
Holistic & Supportive Care for Living Well with Parkinson's 
with Dr. Christopher Tarolli
Wednesday, November 4   |    12 PM (MDT)
Click Here to Register

 
Mental Wellness for Parkinson's Care Partners
with Elaine Book
Thursday, November 12   |    12 PM (MDT)
Click Here to Register

 
If you run into any issues while registering, please email us at info@dpf.org or call 720-259-7851.
Did you miss one of our recent webinars on medication management, Parkinson's disease psychosis, or living well through dance?
You can access all of our past webinar recordings here.
 
VIEW MORE WEBINARS

Subscribe to Parkinson’s newsletters


Shakers Anonymous
https://www.shakersanonymous.org/subscribe-to-newsletter

Michael J. Fox Foundation
https://www.michaeljfox.org/newsletter

Parkinson’s News Today
https://parkinsonsnewstoday.com/

APDA Connecticut Chapter
https://lp.constantcontactpages.com/su/JLqy59x/CTsignup

Parkinson’s Foundation
https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
Copyright © 2020 Parkinson's Body and Mind Inc., All rights reserved.


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