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Issue No. 11: November 2020
ROMAC is a project of Rotary districts in Australia and New Zealand

CREATING NETWORKS    |    IDENTIFYING NEED    |    TAKING ACTION

Chairman's Message



 
With the departure in October of Vincent after 16 months in Canberra, ROMAC, for the first time in it's 32 year history, currently has no patients being treated in Australia and New Zealand, and although COVID restrictions have eased somewhat in our two countries in past weeks, the international borders remain closed, meaning that it will be some time yet before we start accepting new patients.  Unfortunately, we are constantly receiving referrals for children needing treatment, but are unable to help at the moment.  Some of these children will be brought in as soon as travel restrictions are lifted and hospital beds have been procured.

Vincent's story and notification he was returning to the Solomons after such a long period in Australia caught the attention of the media and resulted in excellent coverage in  the Canberra Times and on the ABC - both their evening television news and their on-line service (where it was displayed for 3 days). I also was interviewed by ABC's Indira Naidoo on Sunday 1st November during their Grassroots program.  Sincere thanks go to District 9705 ROMAC Chair, Sandra Goldstraw for organising the publicity, and of course, for hosting Vincent and his mum, Cosinta during their stay in Canberra.

Lack of patients has not meant lack of activity for our ROMAC volunteers.  It has been an ideal opportunity for the Board to refine some of the administrative procedures involved in running the organisation including streamlining the processes for identifying and approving patients. 

To some extent COVID has provided us with opportunities we would not otherwise have had.  Since March I, and my team, have made close to 100 presentations to clubs around Australia, most via Zoom.  Many have been to Clubs in rural or isolated areas not easily visited by a ROMAC volunteer and frequent comments were that they had not had a club presentation on ROMAC for many years.  If your club is yet to have us present, please let me know and I will arrange for one of the team to visit your club - either virtually or in person - at a mutually convenient time.  We have an excellent 10 minute video which details what ROMAC is and does and when this is followed by a Question and Answer segment, a comprehensive understanding of ROMAC can be achieved.


As ROMAC relies almost entirely on Rotary clubs and Rotarians for funding - we get no Government funding what-so-ever - and as most clubs have been hamstrung in their fundraising efforts during the past 6 months, donations to ROMAC have, as a consequence, been down considerably on past years. Club who have traditionally supported us each year have (mostly) continued to do so, but necessarily (they haven't been able raise it, so they can't give it away!) their contribution has been significantly lower than previously.  We appreciate this factor, and are very grateful for the continued support from clubs who are loyal to us.

With Christmas only a matter of a few short weeks away, I would like to take this opportunity to wish you and your family and friends best wishes for a happy and healthy festive season.

Stay safe.

Kind regards



                                                      
PDG Harold Sharp OAM
Chairman

Patient Stories

Vincent

There was much excitement and many tears when we said farewell to 18 month old Vincent who returned to his home in the Solomon Islands at the end of October.


Vincent arrived in Canberra as a 2-month old baby, accompanied by his mother, Cosinta, in July 2019 requiring urgent surgery to connect his oesophagus to his stomach.  He was being fed through a canula into his stomach. 

It was expected that he would be in Australia for around 6-8 months. 

Following three operations, numerous procedures, and countless visits to doctors and other medical specialists, Vincent was finally given the all-clear and after 16 months in Australia was allowed to fly home. 

District 9705 ROMAC Chair, Sandra Goldstraw and her husband Brian who home hosted Vincent & Cosinta during their stay in Canberra, said it was sad but gratifying to be able to put Vincent and Cosinta on a plane home.  After such a long stay with them, they have become part of the family and Vincent even called Sandra "Grandma".  Sandra said it was wonderful to see Vincent develop into a healthy and happy toddler after all the hardships he has endured since birth.  "We are going to miss them", said Sandra.

ROMAC is sincerely grateful to Professor David Croaker, Dr Celine Hamid, and all the staff at Canberra Centenary Hospital who have treated Vincent, and to the Solomon Islands High Commission team who helped Cosinta and Vincent acclimatize to life in Australia. 

Thanks also go to Sandra and Brian and the whole District 9705 team - without your dedication and commitment, changing Vincent's life would not have been possible.



Photo: The Canberra Team


Read the ABC's story on Vincent:

 
Download Vincent's Story
CONNECTING WITH THE EMBASSIES

Working with the local Embassies is a vital and essential part of ROMAC's operating procedure when bringing patients into Australia and New Zealand for treatment.  In most cases the patients and their families (or their carers) have little or no understanding of English which makes communicating with them very difficult.  It also makes it very difficult for them to understand exactly what the treatment involves.

When staff from the appropriate Embassy are involved, acting as meet and greeters and interpreters, it  alleviates a lot of the stress and uncertainty facing the family and helps them to adapt to the daunting experiences they face.

In Vincent's case, the Solomon Islands High Commission staff were very helpful, providing vital support to Cosinta and Vincent - accompanying them to medical appointments, visiting Vincent in hospital after this surgeries and procedures, and taking Cosinta shopping or on trips to galleries or parks to take her mind off things whilst Vincent was undergoing treatment. 

As the following letter from the Solomon Islands High Commission indicates, the Embassy staff are always very appreciative of the life-changing role that ROMAC plays - providing medical treatment which is not available to these patients in their homeland.  It's a win-win situation!

The photo below shows the Solomon Islands Deputy Solomon Islands High Commissioner, Walter Diaman, and wife Nancy, 
 with D9705 ROMAC team - Sandra and Brain Goldstraw and Robyn Pearson (holding Vincent) fare-welling Vincent and Cosinta at Canberra airport.

Rosie



Rosie's Story

My name is Rosie formally known in my village in Fiji as the Monkey and Frog girl.
 
For seven long years I had endured daily torment from my peers.  I was afraid to look at myself in the mirror. I was a very shy girl who wouldn’t have eye contact with anyone who came to talk to me because of my appearance. I had low self-esteem and would hide behind mum with my eyes glued to the ground trying to ignore that person in front of me.
 
Terribly disfigured from the fate of birth. My nose lay flat on my face, my eyes were two inches further apart than normal due to a Tessier cleft running through the front of my face and across my head.  This caused my eyes to bulge.
 
My right arm was a small stump with grotesque looking “fingers” at the end.  I kept a towel draped across that arm when in public to hide my shame.. My left arm of normal length had three fingers.
 
I hated going out in public and especially meeting new people. I lived in a country where I knew this was my lot for life. How was I going to cope?  Attending a cripple/special school made me feel comfortable for the other children like me had disabilities including the deaf and blind.  I remember one day after school my brother and I were waiting for our bus to go home when all of a sudden a group of people young and old surrounded us.  What followed I found frightening. They kept staring, laughing and making faces at me. I wanted to get to the safety of home as soon as possible.  Whenever we had to attend a special occasion such as a church function, I preferred to stay home. Rather than having people stare at me.
 
ROMAC
 
Being a ROMAC patient is a remarkable experience. For me it all began at 7pm October 27 1990. My mother was to embarrass me further when she suddenly announced that she was taking me to the Nadi Travel Lodge to meet some white men who said they could change my life and appearance.
 
I felt so ashamed and didn’t want to go. I hid behind mum pulling on her dress to hide.
 
At that time I met the legendary Rotarian ROMAC Founder Barrie Cooper with His team in my hometown in Nadi in Fiji.
 
This was to be the first time I had met people who actually cared. They didn’t appear to notice my disfigurement.  All they wanted to do was help.
 
All I could remember from that night was a lot of cameras flashing non-stop in front of me. After that, I sat quietly with my Siblings while Mum and Barrie with his team discussed what could be done.  Within a blink of an eye we were at the Airport bound for Australia. The reception that Mum and I received from the Australian people such as Rotarians, Hosties, Medical staff at Adelaide and Melbourne and the community was exceptional during my medical treatments in 1991, 1993, 1997 and 1998.
 
In March, 1991 I had my first operation at the Adelaide Children’s Hospital when it appeared as though my head was dismantled and rebuilt. 
 
If I was to talk about ROMAC at the age of 8 years old, I would be saying negative comments because of the pain I had gone through, and yes I have lost count of the many operations I had during that timeline - it has hard for me to understand why I had to go through those medical procedures.
 
Although I had many operations I am now able to proclaim the work of ROMAC wherever I go and to express my gratitude for the decisions made, providing me the opportunity to have my life transformed.
 
ROMAC has meant so much in my life in so many ways; particularly by gaining confidence to socialize with the rest of the community.  Moreover they have encouraged me to wear a prosthesis at the age of 8 years old till today for self-assurance and ROMAC has indeed stretched my horizons.
 
After the operations I returned home where I was able to attend normal schools (primary & high schools) with my siblings.  At first it was hard to attend a school with children who didn’t have disabilities.  I was still carrying the psychological scars from my old school.  It felt like a marathon at first but nonetheless I received great support from teachers, classmates and my siblings.
 
In overcoming my shyness, I was able to attend church functions and socialize with people and even greater than that I didn’t receive any rude comments as I had before ROMAC entered my life.
 
I was able to participate in drama in front of audiences and got involved with community service as well and no more hiding behind mum.  However there seemed no hope to gain employment  in Fiji due to my disabilities.
 
I battled times of depression in those early years.
 
In 2001 I returned to Australia to join my father and in 2015 I received my Citizenship for which I am forever grateful to be part of this wonderful country.
 
I now live independently and have a job in Newcastle.
 
As a grown up woman I look back on the journey I had with ROMAC. 
 
My acknowledgement of appreciation will always be shown while visiting a fellow ROMAC kid or visiting a Rotary club to elaborate what this great organization has done to my life and helping the forgotten/disadvantaged children  and to restore dignity allowing them to live a normal live in our society and the people who are involved in these great organization are exceptionally wonderful people.
 
I thank Barrie Cooper, ROMAC, Rotarian, medical staffs in Adelaide, Melbourne and the Australian people for the love and generosity shown through the years
 
Thank you.
 
Rosie.

Rosie with Ramesh and Jessie (left) and Dulcia (right)
 
Editors' Note:  Rosie is now a ROMAC Ambassador and is very involved in mentoring new ROMAC patients helping them adjust to life in Australia while they undergo treatment.  She is an excellent speaker and is happy to present at District Conferences, club meetings and other events.  If you would like to invite Rosie to speak at one of your functions, please contact ROMAC Chair, Harold Sharp on chair@romac.org.au or 0411 044 691.
 
OUT AND ABOUT
A recent trip to South Australia to visit relatives involving a five-hour stop-over at Adelaide airport provided an ideal opportunity for ROMAC Chair, Harold Sharp, and his wife, Gina Growden (who is ROMAC's Communication Chair) to meet with Central Regional Chair, Ian (D'Arcy) Walsh.  As it coincided with the Rotary Club of Adelaide's weekly meeting, D'Arcy invited Harold and Gina to accompany him to the luncheon which was held in the beautiful grounds of Adelaide oval.

A brief guided tour of the city and North Adelaide and then a glance at the hallowed grounds took place prior to the meeting and then it was time to enjoy some fellowship and one of the best Rotary meals ever served.

The luncheon also provided the opportunity for Harold and Gina to meet some very generous ROMAC supporters and to thank them personally for their dedication and commitment to the organisation.
 

 
ROMAC Dinner raises  $7,500

A very enjoyable and successful fundraising dinner organised by the District 9630 ROMAC committee, led by PDG Jitendra Prasad, was held on 31st October at the United Services Club in Spring Hill, Qld.  Whilst most guests attended in person, there was a special address given by ROMAC Ambassador, Rosie Lotawa who Zoomed in from her home in Newcastle to share her ROMAC story.  ROMAC Chair, Harold Sharp, also joined the dinner by Zoom. 

Guests enjoyed a sumptuous two course meal and live music and participated in a number of raffles with some great prizes - including a cruise for 8 people on a luxurious yacht.

Congratulations to all involved in organising the event.  A great night and a great result!



Dinner organiser, District 9630 ROAC Chair, PDG Jitendra Prasad enjoys a drink with current District Governor Patrice Robinson

CLUB PRESENTATION ON ROMAC


Have you had a presentation on ROMAC at your club recently?

If not, why not invite one of our volunteers to attend your meeting in the near future - either in person or virtually.
Presentations include a 10 minute video which outlines how ROMAC operates and describes some of the stories of the 500 patients who have been treated by ROMAC over the past 30 years.
All presenters are knowledgeable and well trained, and are able to answer any questions that may arise.

YOU WILL NOT BE BORED!  YOU WILL BE MOVED!

We are also available to present at District Conferences or other training programs.

For more information or to book as speaker, contact ROMAC Chair, Harold Sharp on 0411 044 691 or chair@romac.org.au 




 

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ROMAC acknowledges some photos used in this newsletter are courtesy of Canberra Times photographer:  Karleen Minney
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