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COMET 2020 webinar series recordings
COMET recently held a series of free webinars, which began on the 8th and 9th October, with two consecutive webinars on the days that would have been COMET VIII. We then held a further four fortnightly webinars, with the series ending on 3rd December. Thank you to everybody who attended the webinars, we hope you enjoyed them. The recordings from all webinars can be found below.
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Professor Hywel Williams (NIHR Health Technology Assessment Programme, and Professor of Dermato-Epidemiology and Co-Director, Centre of Evidence-Based Dermatology, Queen’s Medical Centre Nottingham University Hospitals NHS Trust) talks about research waste, reflects on the reasons why such undesirable behaviour patterns persist and suggests some solutions going forward. View slide set here.
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Professor Paula Williamson and Dr Sarah Gorst (University of Liverpool) share key findings across the body of evidence about core outcome sets in the COMET database, including an overview of the outcomes that are included in core outcome sets, the methods of development used, the different stakeholders involved, and the countries that participants come from, amongst other topics.
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Dr Eleanor Perfetto (National Health Council) provides a patient-advocacy community perspective on core outcome sets, highlighting the goals and needs of patient-centred core outcome sets. John Turner (Public Co-Chair of COMET’s PoPPIE Working Group) and Heather Barrington (COMET’s Patient and Public Involvement Co-ordinator) also share details of the range of resources available to support the inclusion of patients in core outcomes set development.
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Dr Steven MacLennan (University of Aberdeen) summarises the results of a recent study investigating the reasons for score change in Delphi surveys for COS development. Marie Österberg and Christel Hellberg (Swedish Agency for Health Technology Assessment and Assessment of Social Services) also provide a Health Technology Assessment agency perspective on what is a usable core outcome set.
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Karen Hughes (University of Liverpool) presents the findings of a systematic review assessing the uptake of a core outcome set, exploring variation across health areas and the possible barriers to uptake. This talk also considers the impact that a trial funder can have on facilitating core outcome set uptake. Dr Ian Saldanha (Brown University) summarises recent assessments of the incorporation of core outcome sets into systematic reviews from Cochrane and from the Agency for Healthcare Research and Quality (AHRQ) Evidence-based Practice Centers (EPCs). Professor Paula Williamson (University of Liverpool) discusses the uptake of core outcome sets through the health care ecosystem.
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Jamlick Karumbi (University of Liverpool; KEMRI-Wellcome Trust) presents an overview of his work, which focuses on improving the uptake of core outcome sets in low- and middle-income countries. Bilal Alkhaffaf (Salford Royal NHS Foundation Trust and University of Manchester) reflects on experience gathered from a recent COS in gastric cancer, focussing on approaches used to increase international participation from key stakeholders including patients.
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COMET alerts system - NOW LIVE
COMET is now offering a free alerts system. You can sign up to receive one or more of the following alerts via email:
Newly registered or published studies – This relates to all new (ongoing) and published studies that are added to the COMET database, along with any existing ongoing study that has been updated to published.
Involvement of Health Technology Assessment (HTA) organisation –
When a COS developer registers an ongoing study in the COMET database, they indicate whether they are interested in involvement from HTA organisations. For those studies that indicate an interest in HTA involvement, their details can now be shared with HTA organisations.
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The COMET PoPPIE Working Group Resources
The COMET People and Patient Participation, Involvement and Engagement (PoPPIE) Working Group’s role is to lead and oversee the public participation, involvement and engagement work of the COMET Initiative. PoPPIE have now co-produced with patients a range of resources which are available on the Patients and Public area of the COMET website. Alongside three plain language summaries explaining what a COS is, what happens in a COS Delphi and what a Nominal Group Technique is, PoPPIE have co-produced with patients, an animation explaining what COS are and why they are needed. COS developers have explained how useful these resources have been, for example, in helping them design their participant information resources.
If you’re planning hosting a consensus meeting with patient participants, why not check out the consensus meeting resources? There are resources on designing an accessible consensus meeting, two brief stories from patients explaining what it’s like taking part in one and an example of an evaluation form for a consensus meeting. PoPPIE is also piloting a template set of slides for use in a patient pre-meeting (just before the main consensus meeting). If you’re interested in finding out more about these or piloting them please contact Heather Barrington, PPI co-ordinator (heather.bagley@liverpool.ac.uk).
PoPPIE also has a document outlining the ethical considerations for COS studies, a Patient and Public Involvement Checklist for a COS study and a resource on writing accessible information. Alongside these resources there are several links to other external useful publications and websites. PoPPIE have also run webinars for patient organisations – the “No Choice of Outcomes About us Without us Webinars”. These webinars include presenters who have been patient participants / public research partners in COS studies and patient organisations that have worked with COS teams. They may prove helpful to you, particularly if you are considering working with a patient organisation.
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Grant awarded to develop PPI in COS animation video
Heather Barrington and Sarah Gorst have recently obtained funding from the University of Liverpool Wellcome Trust Public Engagement Grants Scheme to develop a video animation highlighting examples of Patient and Public Involvement (PPI) activity in core outcome set (COS) development. This video, which will be developed in collaboration with public research partners and researchers from The University of Exeter and NIHR Nottingham Biomedical Research Centre, will enable COS developers to publicise and explain PPI opportunities. Additionally, we anticipate that the animation may encourage COS developers to consider the range of ways that PPI could help in their study.
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COSMiD – Core Outcome Set Methodological research Domains
Members of the COS subgroup of the TMRP Outcomes Working Group, led by Dr Nicola Harman at the University of Liverpool, are currently working on a collaborative project to review COS methods research and help support evidence based COS development.
The COSMiD project will develop a set of domains for COS methods studies and review published and ongoing work to help identify gaps in the evidence.
If you plan to include an evaluation of COS development methods in your core outcome set please contact the COMET Coordinator Dr Sarah Gorst who will pass on the relevant information to the COSMiD team.
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COS consensus meeting observer requests
COMET has received requests from ongoing COS developers who would like to observe an upcoming consensus meeting to help familiarise them with the process and help them to plan their own consensus meeting later down the line.
Therefore, if you will be running a consensus meeting at any point in 2021 and are willing to have another COS developer observe your meeting , please get in touch here.
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Adding links to COMET database entry
Please let us know if you would like to add any links to your ongoing or published entry in the COMET database. Examples can include links to websites, YouTube videos, presentation clips, etc.
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Follow COMET on Twitter:
@COMETinitiative
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