Spanish Registry Seen to Capture Disease Scope, May Guide Research
Jan 29, 2021 12:00 pm | Joana Carvalho
The Spanish Bronchiectasis Registry (RIBRON) accurately reflects the characteristics of people with bronchiectasis in Spain, and may provide a solid basis for studies focused on multiple aspects of this disease, a study reported. Registry analyses, for example, showed that around two-thirds of enrolled patients are women, and they tend to have milder disease forms compared […]
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The Spanish Bronchiectasis Registry (RIBRON) accurately reflects the characteristics of people with bronchiectasis in Spain, and may provide a solid basis for studies focused on multiple aspects of this disease, a study reported. Registry analyses, for example, showed that around two-thirds of enrolled patients are women, and they tend to have milder disease forms compared […]
The two COVID-19 vaccines that recently received emergency approval from the U.S. and other worldwide regulatory agencies are expected to pose little risk to the rare disease community, including to patients with compromised immune systems or those participating in gene therapy studies. That was the message of a recent webinar, hosted by the National Organization […]
