Celebrating 5 years of growth, collaboration and endeavour
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The NHMRC Centre of Research Excellence has been running for over 5 years! And what growth we have seen over that time. The photo compilation above highlights some of the events, and people who have taken part in the CRE over the last 5 years. I could have made 5 of these and still not included everyone!
We’ve made great strides in connecting researchers, clinicians and people with stroke, and others who share the goal of changing the stroke recovery and rehabilitation landscape. Through these connections we’ve set new research standards, created new partnerships to support new projects, new people, and new approaches to tackling the many problems that affect people who’ve experienced stroke. We’ve made a difference! And a big thank you goes out to the hundreds of people who have been part of this endeavour.
I’ve highlighted just a few of the achievements over the last 5 years below:
- Our research has generated over 390 stroke rehabilitation publications, policy documents and reports, downloaded more than 225,000 times
- The 2, CRE-led international stroke recovery and rehabilitation roundtables have led to 9 recommendations documents that are changing research, and to the development of the International Stroke Recovery and Rehabilitation Alliance (ISRRA)
- CRE researchers have delivered over 625 presentations, with 15 outstanding research awards many to our future leaders
- The CRE has helped build a Stroke Volunteer Research Register and a stroke biobank – both of which have long term value to consumers and researchers alike
- We’ve helped inform and improve how rehabilitation interventions and projects are implemented in practice by providing training and tools
- Our goal to grow the next generation of stroke recovery and rehabilitation researchers and leaders has led to 26 PhD students, 39 postdoctoral fellows and 7 clinicians embedding themselves in our projects over the last 5 years!
- We’ve held 59 networking, training and capacity building events, with over 1,144 attendances and we have had the pleasure of working with, and gaining insights from, over 85 people with stroke as part of this activity.
- If you want to put some of this into a $ figure, our experts estimate that we’ve been able to leverage $5.50 for every $1.00 spent – and built an engaged, vocal and active community.
We should all be extremely proud of the achievements and impact of this CRE, and we look forward to sharing the achievements of our people and partners as we continue to work to improve stroke recovery and rehabilitation in Australia and beyond.
Julie Bernhardt
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Vision: A world where global collaboration brings major breakthroughs for people living with stroke.
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Now the Alliance has officially launched, it is time to sign up as an ISRRA ordinary member. Ordinary, inaugural membership is free. It is the first step in building the Alliance and will also help us understand our membership.
By signing up you will receive the following information:
- Email communications, including newsletters (no more than once a month)
- Notifications about upcoming Alliance meetings or opportunities to get involved with projects
Note this will form the new ISRRA membership email list therefore anyone who does not sign up will no longer receive any further ISRRA communication.
Please feel free to forward this link to any colleagues who might be interested. The sign up process will remain open, there will be no closing date.
If you have any questions you can contact us at admin@strokerecoveryalliance.com, otherwise please click here to sign up.
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Telehealth for Stroke Community of Practice – Update
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The Australian Telehealth for Stroke Community of Practice (CoP) was established in 2020 as part of the NHMRC Centre for Research Excellence (CRE) in Stroke Rehabilitation and Brain Recovery. The CoP is co-Chaired by Prof Dominique Cadilhac and Prof Coralie English. The CoP, which has a focus on post-acute stroke care, filled a much needed gap in providing support to clinicians pivoting to use telehealth in response to the COVID-19 pandemic and social distancing requirements.
In 2020, the following was achieved:
- 508 members joined from a variety of locations and countries, including stroke clinicians, nurses, academics, and other health professionals with relevant interest and expertise.
- The CoP worked in partnership with the Stroke Foundation to collate resources, including guidance materials on how to conduct telehealth consultations and made them available on the InformMe webpage.
- Five main areas of interest were identified and separate subgroups to advance these areas established. Online discussion channels were configured on Microsoft Teams for general communication and the following areas of interest:
- Communication and swallowing problems (aphasia and dysphagia)
- Neuropsychology, memory and cognition problems
- Physical and sensory functioning (including mobility)
- Secondary prevention and medical support
- General telehealth, quality assurance and billing
- Research and evaluation
- Co-leads were appointed for each of the Interest Groups to facilitate the discussions and relevant activities to fill identified gaps.
- Three virtual meetings were held and were well attended by members.
- Two educational webinars were also held in 2020:
- Wednesday 29 July 2020
- Southern Adelaide Local Health Network (SALHN) Rehabilitation Service: Telerehabilitation Antonia McGrath, Emma Mills and representatives from the SALHN Rehabilitation Team
- Thursday 8 October 2020
- Telehealth in speech pathology stroke services: Where to find resources and the development of telehealth policy documents and portal for Speech Pathology Australia. Dr Annie Hill and Dr Clare Burns
In 2021, Prof Dominique Cadilhac, Prof Coralie English and the CoP leadership group will continue to work with and support the members of the CoP through resource sharing, mentoring, educational webinars and educational seminars.
If you would like to become a member, please use this link here.
If you have any telehealth information or resources that may be of interest, please send them to stroketelehealthcop@florey.edu.au.
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Aphasia CRE Seminar Series 2021
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Wednesday 24 February 5.00pm – 6.00pm
Melbourne / Sydney (AEDT)
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The CRE in Aphasia Recovery and Rehabilitation kicks off the 2021 Seminar series with Dr Anna Volkmer, presenting direct from London UK.
Please register to join the Seminar here.
Dr Volkmer completed her clinical training in speech and language therapy at University College London in 2002. Since then, she has worked clinically with adults with acquired communication difficulties, developing a particular interest in primary progressive aphasia in 2008 whilst working in Melbourne. She returned to the UK and wrote a book on “Assessment and Therapy for Language and Cognitive Difficulties in Dementia and Other Progressive Diseases” (J&R Press). During her PhD, Dr Volkmer developed and piloted a communication partner training intervention for people with PPA and their families, entitled Better Conversations with PPA (BCPPA). She is now employed as a lecturer and senior researcher at UCL, continuing her research in this area. She also continues to work clinically, at the National Hospital for Neurology and Neurosurgery in London and is the co-lead of the PPA support group at UCL.
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Virtual Career Development Workshop
ESO - GAINS - WSO Early Career Investigators
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The recorded sessions from the ESO - GAINS - WSO Early Career Development Workshop are now available to watch online.
200 participants and 35 mentors from across the globe joined the Virtual Career Development Workshop held in December. The event summary can be viewed on the World Stroke Organisation website.
You can watch the recording here.
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AuSCR Public Summary Report 2019
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The 2019 Australian Stroke Clinical Registry (AuSCR) Public Summary Report has been released. Read about performance benchmarks: thrombolysis; ECR; stroke units; aspirin within 48 hours; early mobilisation; discharge care plan, medications & destination here.
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Congratulations to Dr Elizabeth Lynch, who started a new position in February as Matthew Flinders Fellow in the College of Nursing and Health Sciences at Flinders University.
Also, huge congrats to Paul Mackie who recently passed his PhD (University of Newcastle and Hunter Medical Research Institute). Paul's research aims to investigate how reducing sitting time can improve stroke survivors' blood pressure.
Liam Johnson and Angelica Thompson-Butel have a new PhD student, Sarah Ashcroft, at the Australian Catholic University.
Prof Coralie English is an invited speaker at the International Stroke Conference (ISC) in March and will present on "How do we build better Guidelines and Protocols to support safe and effective early mobility practice."
Prof Julie Bernhardt will be presenting at the same session on "How safe is early (within 24 hours) mobility in acute stroke? Evidence from the field."
Dr Kate Hayward will also present at the ISC on "Is enrichment ready for the clinic?"
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Prof Steven Faux and Kim Beesley (consumer) spoke at the Nightlife (ABC Australia) on the 1st of February about Stroke Rehabilitation. You can listen to the recording here.
Dr Brenton Hordacre's (University of South Australia) research on post-stroke depression has been featured on 7News. Click here to watch the video on YouTube.
Brooke Parsons, a stroke research consumer consultant who has partnered with Prof Julie Bernhardt’s team over the past 15 years, held a “Thank You” event and went indoor skydiving recently, and so did her support team! The event, and her advocacy for stroke survivors, were profiled on Channel 9 news and can be viewed here.
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Congratulations to the 2021 Research Grant recipients - Stroke Foundation:
- Coralie English received the Nancy and Vic Allen Stroke Prevention Memorial Fund Grant ($100,000 over two years) for the project "i-REBOUND after stroke – development of an online program to prevent recurrent stroke and support long-term health and well-being".
- Heidi Janssen received an Early Career Seed Grants ($50,000) for the project "Yarning up After Stroke". Her research will work to adapt the Taking Charge intervention tested by Harry McNaughton and team for use with Aboriginal and Torres Strait Islander people, taking a co-design approach.
- Di Marsden also received an Early Career Seed Grants ($50,000) for the project "Let’s have a yarn about our bladder - partnering with Aboriginal people to implement stroke guideline-recommended urinary continence and lower urinary tract symptom care that is culturally appropriate and safe".
Natalie Fini was awarded a University of Melbourne Early Career Researcher Grant ($36K) for her project titled: "Co-design of a Personalised Physical Activity Intervention for Stroke Survivors".
Dana Wong and other researchers received a Stroke Foundation seed grant, 2021 ($50K) for the project “Optimising mood and wellbeing with aphasia after stroke: a feasibility study of PRevention Intervention and Support in Mental health (PRISM) via telerehabilitation”.
Dana and colleagues also received an NHMRC Ideas Grant, 2021 – 2026 to run the project “Communication Connect: Improving long term communication and mental health outcomes following stroke and brain injury”, ($1,809,756).
Karen Borschmann and Dana Wong received the St Vincent’s Hospital (Melbourne) Research Endowment Fund, 2021-22 for the project “Towards equitable health service delivery: Understanding the influence of health literacy on the unmet needs and preferences of stroke survivors and carers”, ($19,600).
Erin Godecke and colleagues received a Raine Foundation Clinical Research Scholarship grant to run the project "Pushing the length of stay in stroke rehabilitation: What’s lateropulsion got to do with it"? 2021-2024, ($223,000).
Julie Bernhardt is part of a team, led by neuropsychologist Heidi Zeeman in QLD, investigating a new, computer-aided model for diagnosing and managing neglect after stroke. The DIAMOND study is funded by an NHMRC Ideas Grant, 2021-2023.
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Here are some great tips from Dr Shane Huntington on grant writing. Scientists: 10 Steps to help you get your next grant.
If you are not a scientist and would like to learn how to read and understand a scientific paper, check this blog post here.
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Carvalho LB, Chambers B, Borschmann K, Kaffenberger T, Churilov L, Thijs V, et al. Occlusive Disease and Upright Activity in Acute Ischemic Stroke. Journal of Stroke and Cerebrovascular Diseases. 2021;30(4):105604
Rethnam V, Hayward KS, Bernhardt J, Churilov L. Early Mobilization After Stroke: Do Clinical Practice Guidelines Support Clinicians' Decision-Making? Front. Neurol, 05 February 2021. https://doi.org/10.3389/fneur.2021.606525
Hayward KS, Churilov L, Dalton EJ, Brodtmann A, Campbell BCV, Copland D, Dancause N, Godecke E, Hoffman TC, Lannin NA, McDonald MW, Corbett D, Bernhardt J. Advancing stroke recovery through improved articulation of non-pharmacological intervention dose. Stroke. 2021;52(2):761-769
English C, MacDonald-Wicks L, Patterson A, Attia J and Hankey GJ The role of diet in secondary stroke prevention. The Lancet Neurology Published online December 18, 2020 https://doi.org/10.1016/S1474-4422(20)30433-6 (IF 30.039)
Simpson DB, Jose K, English C, Gall SL, Breslin M, Callisaya ML. Factors influencing sedentary time and physical activity early after stroke: a qualitative study. Disabil Rehabil. 2021 Jan 5:1-9. DOI: 10.1080/09638288.2020.1867656.
Lannin NA, Coulter M, Laver K, Hyett N, Ratcliffe J, Holland AE, Callaway L, English C, Bragge P, Hill S, and Unsworth C. Public perspectives on acquired brain injury rehabilitation and components of care: a Citizens’ Jury. Health Expectations. Published online 3rd December 2020 DOI:10.1111/hex.13176
Alme K, Knapskog A, Naess H, Naik M, Beyer M, Ellekjaer H, English C, Hansen H, Kummeneje C, Munthe-Kaas R, Saltvedt I, Selijeseth Y, Tan X, Thingstad P, Aksim T (2020) Is long-bout sedentary behaviour associated with long-term glucose levels 3 months after acute ischaemic stroke? A prospective observational cohort study. BMJ Open 10:e037475. doi:10.1136/bmjopen-2020-037475
Fini NA, Bernhardt J, Churilov L, Clark R, Holland AE. A 2-Year Longitudinal Study of Physical Activity and Cardiovascular Risk in Survivors of Stroke, Physical Therapy, Volume 101, Issue 2, February 2021, pzaa205, https://doi.org/10.1093/ptj/pzaa205
Varley, BJ, Shiner CT, Johnson L, McNulty PA, Thompson-Butel AG. Revisiting Poststroke upper limb stratification: Resilience in a larger cohort. Neurorehabilitation and Neural Repair. February 2021. doi:10.1177/1545968321992048
Marsden DL, Boyle K, Jordan L, Dunne JA, Shipp J, Minett F, Styles A, Birnie J,Ormond S, Parrey K, Buzio A, Lever S,Paul M, Hill K, Pollack MRP, Wiggers J,Oldmeadow C, Cadilhac DA, Duff J, The I-SCAMP Project Team. Improving Assessment, Diagnosis, and Management of Urinary Incontinence and Lower Urinary Tract Symptoms on Acute and Rehabilitation Wards That Admit Adult Patients: Protocol for a Before-and-After Implementation Study. JMIR Res Protoc 2021;10(2):e22902 DOI: 10.2196/22902
Elizabeth A. Lynch, Angela S. Labberton, Joosup Kim, Monique F. Kilkenny, Nadine E. Andrew, Natasha A. Lannin, Rohan Grimley, Steven G. Faux & Dominique A. Cadilhac (2020) Out of sight, out of mind: long-term outcomes for people discharged home, to inpatient rehabilitation and to residential aged care after stroke, Disability and Rehabilitation DOI:10.1080/09638288.2020.1852616
Brogan E, Ciccone N, Godecke E. An exploration of aphasia therapy dosage in the first six months of stroke recovery, Neuropsychological Rehabilitation; 2020 on-line.DOI: 10.1080/09602011.2020.1776135
Stolwyk, R., Mihaljcic, T., Wong, D., Chapman, J., & Rogers, J. (2021). Post-stroke cognitive impairment negatively impacts activity and participation outcomes: A systematic review and meta-analysis. Stroke, 52, 748-760. DOI: 10.1161/STROKEAHA.120.032215
Evans, F., Stolwyk, R., & Wong, D. (2021). A brief period of wakeful rest after learning enhances verbal memory in stroke survivors. Journal of the International Neuropsychological Society, DOI: 10.1017/S1355617720001307
Nguyen, M., Wong, D., Barson, E., Staunton, E., & Fisher, C. (2021). Psychological and cognitive barriers to diabetes-related foot complication treatment: Clinicians’ perspectives. International Journal of Lower Extremity Wounds, DOI: 10.1177/1534734620983181.
Richardson, M., Kleinstäuber, M., & Wong, D. (2020). Nocebo-Hypothesis Cognitive Behavioural Therapy (NH-CBT) for persons with functional neurological symptoms (motor type): Design and implementation of a randomised active-controlled trial. Frontiers in Neurology, 11, 1-14 (Article 586359). DOI: 10.3389/fneur.2020.586359
Tabesh, M., Hachem, M., Lau, L.H., Borschmann, K., Churilov, L., Price, S.A., Sumithran, P., Donnan, G., Zajac, J., Thijs, V. and Ekinci, E.I., 2021. Feasibility trial of metformin XR in people with pre-diabetes and stroke (MIPPS)-randomised open blinded endpoint controlled trial. Journal of Clinical Neuroscience, 86, pp.103-109.
Yang CL, Bird ML, Eng JJ. Implementation and evaluation of the Graded Repetitive Arm Supplementary Program (GRASP) for people with stroke in a real world community setting: Case Report. Physical Therapy. 2021 Jan. DOI: 10.1093/ptj/pzab008.
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International Conference on Neurology and Epidemiology 2021
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ICNE 2021Virtual Conference
19 – 20 March 2021
This international conference will bring together scientists and experts in all major fields of experimental and non-experimental neurology, with presentations ranging from clinical trials and meta-analyses to cohort, case-control and case-report studies.
The main topics of the conference are all major neurological disorders, including stroke, dementia, movement disorders, epilepsy, headache.
This international conference will provide an excellent opportunity for neurologists, public health experts, neurosurgeons, epidemiologists, neuropsychologists, rehabilitation specialists, geriatricians, nurses, aged care specialists and health care providers working in the area of experimental and non-experimental epidemiology of neurological disorders to share their new ideas, research findings and experience.
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International Stroke Conference 2021
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13th AAA National Conference Online
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Every Wednesday in June 2021. June 2nd, 9th, 16th, 23rd, 30th.
Register online
FREE for AAA members & people with aphasia. $50 for non-members.
Theme: Relationships
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Smart Strokes 2021 in Brisbane
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World Stroke Congress 2021
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