GENETIC LINK UPDATE
The GSNV has relaunched the Genetic Link website
Welcome to our new relaunched Genetic Link website- home of a collection of resources specifically for our Genetic, Undiagnosed and Rare Disease community. This website has resources for Individuals and Families without needing a log in, plus Support Groups and Health Professionals where a log in is required and is linked to your GSNV membership.
SUPPORT GROUPS:
Head to the SUPPORT GROUP MENU
To log in you will need your support groups unique login and password as a GSNV member. If you have forgotten these details or haven't registered to be a member with us yet, please contact us to set this up.
Once logged into the support group area you will now find 3 distinct areas of resources :
1. General Not-for-profit Resources - useful links covering all topics that inform a support group organisation
2. Share for Rare Resources- allows you to Book an Expert
3. Support Group Lifecycle Stages - resources and documents to support the growth of support groups through the 3 stages of its lifecycle.
HEALTH PROFESSIONALS:
Head to HEALTH PROFESSIONALS MENU
Once logged into the Health Professionals area you will now find 2 distinct areas of resources :
1. Genetic Health Professionals
2. Non Genetic Health Professionals
We will be continually adding to the resources in the Genetic Link and welcome your feedback and input.
There is an area dedicated to RESOURCES CREATED BY SUPPORT GROUPS FOR THEIR COMMUNITIES
and we encourage you to share with us documents you have created along your journey that have enhanced the organisational nature of your support group and community.
Currently we have placed other resources here until we receive those from you.
If you are happy to share resources to be accessed through this portal by other support groups to save them time and expense, please contact us at
info@gnsv.org.au
email heading: GENETIC LINK RESOURCES
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