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Our New Customized Patient Records Platform, MWS Matrix Portal, is now available for MWS families in English, Spanish, Italian and French.
 
Step 1: Request Access 
You will be asked to provide caregiver information and the name of your MWS patient. Then, within 24 hours, you will receive a response that provides access to the portal or an email address to respond to, if your request was denied. 
 
Request Access
In addition, the MWS Foundation plans to hold several scheduled webinars, where you can join and ask your specific questions.  The Foundation will notify registrants of dates and times of webinars.  You will also have availability to email specific questions or schedule one on one calls for help if necessary.  While the portal is easy to use, we want to be sure you have the help necessary to make it a valuable resource for you.

Even if you are not sure about how you might use the portal, please register, as the foundation will be using the portal for communication, resources and surveys.  In the near future, we will also have a mechanism for you to ask questions of the medical advisory board.

We look forward to your participation.

 Watch Video Tutorial

MWS Matrix Features

The MWS Matrix Portal includes functions within the following categories:

Medications
Allows for keeping a log of all medications, dosages, and refill dates. Text and email alerts can be set up for medication administration and refill dates.

Symptoms and Activities
Allows patients and caregivers to customize any symptoms or activities they want to track such as seizure activity, doctor appointments, medication changes, or sleep patterns. A graph is then created of multiple activities and symptoms to look for possible correlations.

Journals
Allows creation of journals to easily keep a written narrative of things such as changes in eating, GI issues, physical therapy feedback, and doctor visits.

Documents
Allows uploading of documents so they are easily accessible and in one place.

Message Center
Allows for two-way communication with the MWS Foundation.

Resource Center
Allows the MWS Foundation to make important documents and forms easily accessible. An example might be a document explaining MWS for a new health care provider, therapist, or teacher.

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