Scheduled for upcoming meetings
We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
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Tuesdays at 7:00 PM
June 1st Jay Stratoudakis, Care Partner Support. This meeting is for care partners only.
June 8th Nancy Lombard will be talking about state home care and respite programs available for CT residents
July 13th Dr. Meytin is scheduled to speak to us. He has asked us to suggest topics that we would like him to discuss. Please email them to hagerbrant@gmail.com
Are you interested in being a part of a "PD Journal Club" with Dr. Meytin to discuss recently published PD research articles. There are 2 members of Shaker's Anonymous who are interested in helping to lead the group along with Dr. Meytin. Planning to meet on a monthly basis. If interested in being a part of this group please email hagerbrant@gmail.com.
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Open House Event
Saturday, June 5th
10-11:30am
Free of charge and open to all
Reduce symptoms, sharpen your mind, and stay connected
Interested in joining the PD Body & Mind Program, but not sure if it’s for you? Meet our Parkinson’s specialty certified instructors and try our classes for free.
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Parkinson’s Body and Mind Program
Greenwich YMCA
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.
We can’t wait to welcome this group back into the Y!
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.
Registration
All participants must register for the class via the YMCA of Greenwich App click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.
Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.
Our current schedule is as follows:
Monday: Rock Steady Boxing w/Toni @ 10:00am
Wednesday: Rock Steady Boxing w/Toni @ 9:00am
NEW Tuesday: Tai Chi w/Ken in person and online @ 11 am
Friday: Yoga w/ Francesca @ 10:00am
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 Ray Fructuoso online workout classes
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| Mixed Movement Artist/Certified Personal Trainer |
| Aether Fitness |
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4754446311 m: 2035702425 |
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Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom
Just go to the following link on your iPhone, laptop or desktop.
Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888 |
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Meeting ID: 390 140 5312
Passcode: 321096 (NEW )
Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
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Michael J. Fox Foundation coverage
Flu Vaccine Distributors Saw Strong Sales Last Year, But They Expect a 2021 Slump [Crain’s New York Business – May 21, 2021 – By Shuan Sim and Maya Kaufman]
https://www.crainsnewyork.com/health-pulse/flu-vaccine-distributors-saw-strong-sales-last-year-they-expect-2021-slump
CDC Official Will Join Skoll Foundation; Schwab Charitable Names Its Next President [The Chronicle of Philanthropy – May 21, 2021 – By M.J. Prest] https://www.philanthropy.com/article/cdc-official-will-join-skoll-foundation-schwab-charitable-names-its-next-president?cid=gen_sign_in
Parkinson’s disease coverage
Like Robin Williams, My Mother Had Lewy Body Dementia – And It’s A Massively Misunderstood Disease [The Telegraph – May 21, 2021 – By Karen Hogan] https://www.telegraph.co.uk/health-fitness/mind/like-robin-williams-mother-had-lewy-body-dementia-massively/
How Parkinson’s Affects Family Relationships [Parkinson’s News Today – May 20, 2021 – By Lori Deporter] https://parkinsonsnewstoday.com/2021/05/20/family-relationships
After My Parkinson’s Diagnosis, I Finally Learned to ‘Embrace the Shake’ [Parkinson’s News Today – May 20, 2021 – By Samantha Felder] https://parkinsonsnewstoday.com/2021/05/20/diagnosis-embrace-shake-debut/
Korean Study Ties Air Pollution to Developing Parkinson’s [Parkinson’s News Today – May 20, 2021 – By Forest Ray PhD] https://parkinsonsnewstoday.com/2021/05/21/korean-study-air-pollution-parkinsons-disease/
Iowa Farmer Sues Over Paraquat Exposure [Progressive Farmer – May 20, 2021 – By Todd Neeley] https://www.dtnpf.com/agriculture/web/ag/crops/article/2021/05/20/legal-challenges-grow-paraquats
Chicago Man Performs 30 Burpees in 1 Minute for Guinness Record [UPI – May 20, 2021 – By Ben Hooper] https://www.upi.com/Odd_News/2021/05/20/Guinness-World-Records-Jimmy-Choi-most-burpees-1-minute/4231621524859/
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You are a valuable part of the PMD Alliance Ecosystem. Whether you're living with a disease, caring for someone, leading a support group, or you're a medical professional in the movement disorder space, and we need your creativity!
If you’re someone who paints, crafts, draws or sculpts, or you know someone who is an artist impacted by movement disorders, we ask that you consider donating a work of art for Inspire Me!™ Fair 2021 - a community art exhibit and fundraiser featuring artwork created by people whose lives have been impacted by movement disorders.
All you need to do is complete this online form and you’ll be on your way to sharing your creativity and helping us raise funds to continue providing valuable programming to the PMD Alliance community.
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 Parkinson’s Revolution is an indoor cycling experience that combines passion, determination and community to generate awareness and advance our mission toward a cure. Join us across the country on June 12 (in-person or virtually) for a high-energy ride that will make you perspire while being inspired!
Your ride will work up a sweat AND generate the funds we need to make lives better for people living with Parkinson's. Register to join the movement and we will provide you with the tools you need to exceed your fundraising and fitness goals. Who will you ride for?
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 Join us for Women and PD: Closing the Gender Gap, a free online event for women with Parkinson's and their loved ones. Learn about how Parkinson's disease (PD) affects women differently, as it relates to their symptoms, medications, medical care and support services.
What: We are shedding light on and finding solutions for women-specific issues to help improve the health and well-being of women with PD.
Who: Our speakers are:
– Anna DePold Hohler, MD, FAAN, Chair, Department of Neurology, Movement Disorders Specialist at St. Elizabeth's Medical Center
– Okeanis E. Vaou, MD, Director of Movement Disorders and Deep Brain Stimulation at St. Elizabeth's Medical Center
When: Friday, June 18, 2021; 12 p.m. – 1 p.m. ET
Where: Online Zoom Meeting. Once registered, you'll receive an email giving you the link to watch the program on the date and time written above. Register by June 1 to be mailed a welcome kit including program agenda, relevant fact sheets and more!
How to attend: RSVP now at parkinson.org/masswomen. This is a free event, but registration is required.
For more information, contact Melody McLaughlin at NewEngland@parkinson.org or (781) 552-3790. |
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CUIMC Parkinson's Support Group
During every transition and challenge in your journey of living with Parkinson’s disease, knowing that you are not alone is important. Join us! Providing educational information and support to individuals with Parkinson’s disease and their families. Meeting facilitated by Elizabeth Delaney, LMSW WILL BE HELD VIA ZOOM. Please register to receive the ZOOM meeting link, ID, and password.
When: Last Tuesday of each month, 3:30-4:30PM Where: Virtual ZOOM meeting For information and to register please call Elizabeth Delaney, LMSW at 212-305-5779 or email ead2179@cumc.columbia.edu REGISTRATION REQUIRED
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 There are many aspects of life that are out of our control. You might feel that is particularly true if you’re living with Parkinson’s disease (PD). But diet – the foods that we eat every day – is one of those elements that we do have control over, and many people with PD are constantly searching for diets and foods that will maximize their quality of life and allow them to live their best life with this disease. At APDA we receive many nutrition-related questions. It is a very popular topic, and rightly so since proper nutrition plays a big role in your overall wellness.
As always, APDA has a wealth of information to help you make sense of it all. Here are some of our most popular resources for nutrition:
MIND & Mediterranean Diets: Dr. Gilbert explains what recent studies reveal about these two popular diets. Learn more about what these diets are and their pros/cons so you can decide what’s right for you.
Spotlight on Parkinson’s Disease: Living Well Every Day: For a general overview of nutritional tips for someone with PD, this webinar presents strategies, based on firm scientific evidence, that help support a healthy lifestyle for people with PD.
Weight Loss & PD: Weight loss that is attributed to PD can be caused by a variety of reasons including decreased appetite, increased energy expenditure, swallowing difficulties, and poor gut motility. Because weight loss has been linked to a poorer quality of life in PD and may contribute to increasing frailty, it is important to take action. This blog offers practical tips that may help.
Nutrition & PD Three-Part Series: In this three-part blog series, Dr. Gilbert covers different aspects of nutrition and how they specifically relate to PD. There are a lot of popular diets and trendy supplements, so it can be hard to sift through the information to know what’s really best for you.
- Part One: What we know and don’t know about avoiding particular foods/supplements
- Part Two: What we know and don’t know about taking particular foods/supplements
- Part Three: What we know and don’t know about adhering to particular diets that are often asked about for PD.
Don’t be fooled by quick-fix diets and supplements you might hear about – there’s no quick-fix or one-size-fits-all answer when it comes to nutrition for people with PD.
If you have a specific question about nutrition or other PD-related topics, we welcome you to submit your question to our Ask A Doctor feature on our website.
We also encourage you to follow APDA on Facebook, Twitter and Instagram to stay informed and updated.
Don’t forget to check out our Virtual Events Calendar for a wide variety of free programs and classes you can join from anywhere. There are some great programs coming up – register today!
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LET’S KEEP MOVING WITH APDA:
PHYSICAL THERAPY & EXERCISE
With host Tami Rork DeAngelis, PT, DPT, GCS and special guests Dianna Daly, Dance for PD® instructor, and Sarah Palmer, MS, Exercise Physiologist
May 27, 1 p.m. ET: Let’s Keep Moving With APDA: Physical Therapy & Exercise - Hear from experts about the connection between physical therapy and other forms of movement. Ask your questions live!Remember, APDA is here for you every step of the way. Please do not hesitate to reach out via our APDA helpline at (800) 223-2732 or email us at apda@apdaparkinson.org.
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Parkinson’s Living Room
“Beyond Motor-The Effect of PD on Mood and Thought”
Join on ZOOM! Friday, May 28th 11:00 a.m.
Our next PD Living Room meeting will be next week Friday, May 28th 11:00 a.m. Dr. J. de Marcaida will be discussing The Effect of Parkinson’s on Mood and Thought.
Su Kanchana, MD, PhD, is a Movement Disorders Specialist with Chase Family Movement Disorders Center in Vernon Connecticut. Once a month, Dr. Kanchana meets online to discuss issues and answer questions in an online support group for people with Parkinson’s and their families.
This month, Dr. Kanchana welcomes Dr. J. de Marcaida . Dr. J. Antonelle de Marcaida is director of the Chase Family Movement Disorders Center. She is a board-certified neurologist and fellowship-trained subspecialist in movement disorders and experimental therapeutics, principal investigator for many clinical trials, published author, and a national and international speaker for almost two decades. She was the founding director of the University of Connecticut Health Center Movement Disorders Program and established Eastern CT Neurology Specialists.
We look forward to connecting with you for this month’s topic of exercise for Beyond Motor-The Effect of Parkinson’s on Mood and Thought!
Join us on Zoom by computer or phone:
Video Conference:
1) To access the video conference, please go onto the Zoom website: zoom.us (Note: If you are pasting into your browser, Chrome is preferred.)
2) Click on the Join A Meeting text.
3) You should see a box on the screen appear where you would enter the Meeting ID (943 2916 3292).
4) Click Join.
By Phone Only: To participate by phone only dial 1-646-876-9923. When you are asked for a Meeting ID (943 2916 3292). Please place your phone on mute to avoid background noise, unmute to participate in conversation or ask a question. You may want to use the speaker option, for hands-free listening.
If you are having technical issues with Zoom, we have provided you a link to assist: https://support.zoom.us/hc/en-us/articles/206175806
Please feel free to contact our office with any questions, 860-870-6385.
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Nancy Lombard - Long Term Options Specialist, Southwestern CT Agency on Aging
