Nov.16/23
🍁 2 Courageous Perspectives We're back online now. Blogs group emails continue!
The psychosocial and VHL*. I hope you have about 15 minutes to hear at least one of these stories. I found them really interesting!
- When Sean… was a 20-year-old college student, his life trajectory changed with a rare cancer diagnosis, resulting in the removal of 40 tumors; fifteen years later, a new drug [Welireg] made him feel like a ‘medical miracle’”. Also, credits VHLA for reaching out.
17 minute video
- “’VHL can be devastating physically, financially, emotionally…’” Other topics include newer generations/options, sporadic cancers, family planning and potential resources. Stacy Lloyd, Board of Directors of VHL Alliance in US, Patient. 10 Minute Video
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*VHLA partnership with Cure magazine project
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