🍁 Joining online support group 2015-‘23
Requests to join online group* (“screening”) 2020 to 2023:
· 24 requests confirmed/added
· 18 requests declined; usually because questions not answered, vague (e.g. are you a VHL patient, family member, city, etc.
· 11 members removed; e.g., after long time as last resort, non-contact, consistently negative towards basic ground rules, e.g. privacy, name calling, etc.
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*VHL Canada Peer Community Group online (Facebook private group and Messenger) started with 3 members in 2015 (numbers have fluctuated, currently at 28. But, that doesn't include individual contacts, inquiries, etc.):
2023: 4 joined
2022: 2 "
2021: 3 "
2020: 4 "
2019: 2 "
2018: 2 "
2017: 5 "
2016: 2 "
2015: 3
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