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Nov.27/23
🍁 Belzutifan Video Examples
I can’t travel to the VHL Alliance’s Family Weekend in California, but thankfully the presentations are recorded! As a patient, the ones I’ve seen so far are interesting! Below are 2 “practical/real-life” excerpts.
(We will also have a “movie night” with our online chat group this week. We can watch these videos simultaneously. Click a link and join everyone watching the same video at the same time)
“Belzutifan in VHL” 28:13 to 34:30 6 minutes
- Implications for clinical practice
- How do we decide which patient should receive Belzutifan? Intro and Principles
- Case scenario #1
- Case scenario #2
from Systemic Therapy for Von Hippel-Lindau Associated Tumors | Ramaprasad Srinivasan, MD, PhD. VHL Alliance Family Weekend, Stanford Medical Center: Palo Alto, California, USA, October 2022
“FAQs asked by patients about Welireg" 13:18 to 17:03 (4 minutes)*
- When should it be started?
- Should it be used preemptively?
- Should it be used before or after surgery or radiation?
- Will resistance develop?
*based on my early experience-Lawrence Recht, MD, New Perspectives in the Treatment of CNS VHL
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“Family Weekend 2022,” Stanford Medical Centre, Complete Presentation List
VHL Alliance YouTube Channel
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