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Newsletter - January 2024

We recently received the sad news of the passing of Dr Isaac Suleman MBE. He was a volunteer with Healthwatch for 10 years. In that time he has made a real difference to the residents of East Sussex.

Using his knowledge and experience as a GP in the local area he helped inform our work. 
He enjoyed talking with patients and the public to better understand their experiences of health and care, ensuring they were heard, represented and listened to by decision makers.
 
He was well liked and respected by all staff, board members and volunteers at Healthwatch East Sussex and will be greatly missed.

Our January newsletter

This month our newsletter includes:

Directors Update

We’ve had a busy start to the year here at Healthwatch East Sussex.

Alongside planning our work programme for 2024-25, we’re finalising the report of our 2023 Rye Listening Tour and have recently published a number of new reports on our website here
We’ve also welcomed a new member to the team, Matthew Ryan who has joined us as our new Senior Engagement Officer.  Matthew  started in January, having previously worked in Adult Social Care for 15 years, including in a Neighbourhood Support Team in East Sussex. 

He began his career in public and patient involvement and is passionate about supporting people to make a difference to local services, including people from marginalised communities. Matthew brings a wealth of skills and knowledge to Healthwatch, and we will draw on these over the next 12 months and beyond.

Veronica Kirwan
Executive Director
East Sussex Community Voice, delivering Healthwatch in East Sussex

Latest news and updates

Healthwatch Poll:
Tells us your experience of using the 'Patient Knows Best' platform

This month we want to hear your experiences of using the digital platform Patient Knows Best, which is used by NHS practices and Hospitals in Sussex to host My Health and Care Record.

What works well? What could be improved? How has it helped you?
 
Please share your experience with us via our short poll. 

Click here to take our poll

Quit Smoking this January

Quitting smoking is much easier with the right support. There are lots of options to choose from.
 
The Better Health website has lots of free tools and tips to help you get started and stay on track, including:

  • Links to the NHS Quit Smoking App
  • Details of the local quite smoking service
  • Tips and Hints to support quitting smoking 
Visit the Better Health website here

Keep warm this winter with a warm home check

The cold can be dangerous for those with pre-existing health issues such as heart and breathing conditions or children who are asthmatic. It also can have a negative impact on your mental wellbeing. 

The East Sussex Warm Home Check service provides free impartial energy advice and support and is available all year round.

It helps you to improve the energy efficiency of your home meaning you can stay warm for less and reduce your home’s carbon emissions. The service also provides help, including heating repairs and small home improvements for those who are eligible.  

If you, or someone you know, is concerned about staying warm this winter, find out more about the Warm Home Check service.

You can apply by visiting the Keep Warm and Well website, texting WARM to 80011 or calling 0800 464 7307. 

Warm Home Check Service

National HIV Testing Week starts Monday 5th February


National HIV Testing Week is a campaign to promote regular testing in England.
Regular testing helps to reduce the number of people living with undiagnosed HIV and those diagnosed late.

During the testing week people will be able to order either a free self-test kit for HIV or a self-sampling kit for HIV and syphilis.

For more information visit the link below.
 
National HIV Testing Week

Older people’s mental wellbeing campaign: Don’t brush it under the carpet


A campaign to improve mental wellbeing and raise awareness of self-harm and suicide in older people has been launched by Sussex Partnership NHS Foundation Trust who deliver mental health, learning disability and neurodevelopmental services in Sussex.

The ‘Don’t brush it under the carpet’ campaign aims to:

  • reach and support older people who may be feeling depressed and alone, and guide them to the right support.
     
  • raise awareness of the issue of self-harm and older people, amongst carers, family members and health professionals to enable them to support someone they know who may be struggling.

You can find out more about the campaign and the support available on the campaign webpage.

Healthwatch England:

'What people told us about outpatient appointments'

Healthwatch England  looked at 879 pieces of feedback about what works and what doesn’t when it comes to outpatient care.
 
The stories people shared showed that people experience issues the whole way through the process, from first trying to book all the way up to attending their appointment.

The key themes in the feedback they looked at included:

  • Poor administration
  • Waiting times for appointments
  • Getting to appointments
  • Finding the right department
  • The importance of staff attitude
  • Service integration  

 As a result, they’re calling for:

  • Integrated Care Boards (e.g. NHS Sussex) to support people waiting for NHS treatment, including support or signposting to help for their mental health.
  • Services to improve communications with patients, so nobody feels forgotten or in limbo following delays and cancellations to outpatient appointments.
  • NHS England and Integrated Care Boards to work together to ensure everyone choosing to travel for faster treatment is given support. This must include the costs of transport and accommodation. Otherwise, this option risks deepening health inequalities by only providing solutions to people who can afford to contribute towards the additional costs of travel.
  • NHS England to restart their review of the Healthcare Travel Cost Scheme (HTCS). This must include work to reduce reimbursement time, improve usability, and support providers to offer to patients more proactively.
  • NHS England and the Care Quality Commission (CQC) to restart their annual outpatient survey, so people’s experiences of appointments can be benchmarked year on year. Work should also be announced to collect, report, and analyse real-time experiences of NHS care.
  • GP and hospital teams to give patients a real choice at the point of referral to appointment types and times.
  • ICBs to hire care navigators in secondary care to help guide patients through their care journey, including booking and modifying appointments.
Read the report here

Are you a young person living in Sussex?

Becoming
 a Youth Consultant with NHS Sussex

NHS Sussex are looking for young people aged 16-24 years to become Youth Consultants and help shape future NHS health and social care services in Sussex.
 
Youth Consultants support NHS Sussex to understand what is important to children and young people, and work to make sure that local health and care services are what they need. This could include:
  • Going to meetings with healthcare professionals to talk about plans for services and sharing a young person’s perspective.
  • Helping consult other children and young people by designing surveys or helping run workshops.
  • Designing or reviewing information and communication materials aimed at children and young people.
This is a voluntary role, but NHS Sussex cover expenses and offer reward and recognition payments for some activities to make sure you aren’t out of pocket for taking part, and to recognise the valuable contribution you are making.  
For more information click here

Barriers and inequalities in cervical screening


This week, 22nd- 28th January 2024, has been Cervical Cancer Prevention Week

Healthwatch England have a shared a new blog which brings together some of the key challenges people have shared about cervical screening.

Their blog highlights key barriers to cervical screening, including:

  • Healthcare providers not providing patients with suitable information.
  • Appointments not accessible to everyone
  • Fear of discomfort and embarrassment
The blog also shares information about Healthwatch England's new campaign to address barriers to cervical screening

In November, NHS England set their ambition to eliminate cervical cancer by 2040 by making it as easy as possible for people to get the lifesaving HPV vaccination and increasing cervical screening uptake.

Healthwatch England are supporting their commitment and are running a campaign this year to address cervical screening barriers and improve access.

As part of this work, they have commissioned 10 local Healthwatch to interview the most vulnerable groups of women to understand their experiences in more detail. They will also poll women who have never attended or are hesitant about attending screening. 

They will report their findings in full later this year.

Read the blog here

Become an NHS Sussex Community Ambassador and make a difference.   


NHS Sussex are recruiting volunteers from a diverse range of backgrounds to support them to put people and communities at the heart of NHS Services.

Two types of volunteer roles are available, and you can give as much or as little time as you have available:

  1. Engagement Community Ambassadors work alongside the Public Involvement team to reach into their local community, connect with local people and gather views on health and care services in the area.  
  2. Strategic Community Ambassadors work with clinicians and managers on specific programmes, projects and tasks to represent the public and act as a “critical friend”

All volunteers have access to training and support and are reimbursed for reasonable expenses.  

NHS Sussex embraces diversity and equality and are committed to building a team of volunteers with a variety of backgrounds, skills and views.  

For further information and to apply please contact sxicb.canvolunteer@nhs.net   

Click here to get involved

Enter and View 2023: ESHT Emergency Departments and Urgent Treatment Centres


In August 2023, Healthwatch East Sussex undertook two 24-hour ‘Enter and View’ sessions in the Emergency Departments (EDs) and Urgent Treatment Centres (UTCs) located at Eastbourne District General Hospital and at The Conquest Hospital.

Our 19 authorised representatives, made up of Healthwatch staff and volunteers, captured the experiences and views of 138 patients across both sites during our review.

We focused on several themes:

  • The pathways and services people had used before they ended up at UTC/ED
  • Patients experiences of signing into the departments using the electronic check in service
  • What could be done to improve patients overall experience of using the departments

Our recommendations

Our report sets out our 9 headline recommendations, all targeted at improving the experiences of users of UTCs and EDs, before, during and after their visits.

They focus on several themes, including:

  • Relationships with other services, such as South East Coast Ambulance Service NHS Foundation Trust (SECAmb) and NHS 111, so people’s expectations on which services to use and when are clearly managed.
  • Suggested changes to the ‘check-in’ process for people arriving at UTCs and EDs, so that this is clear, simple and intuitive, but also accessible to all. We also feel staff support needs to be available at all times.
  • A better system for calling patients to be seen, which provides confidentiality, but supports those with hearing impairments, language barriers or other needs.
  • Improved communications to allow UTC and ED visitors to move around, use toilets and obtain refreshments, but not lose their place in the waiting list.
  • Better facilities, such as more choice of food and drink and toilets which were clean, safe,  and easily accessible, should be made available.
  • Improved signage to guide check-in, differentiate between UTC and ED waiting areas, and support the patient journey.

Healthwatch East Sussex will continue to work closely with East Sussex Healthcare NHS Trust (ESHT) and others to follow up on our recommendations, monitor the implementation of any changes and share the feedback we receive on these services.

Read our report here

Healthwatch -  What we have heard about health and care services in East Sussex

We published the December edition of our You Said, We Did’ resource on our website earlier this month. This document highlights how we have responded to enquiries received by our Information and Signposting Service, as well as some of the wider actions we have taken in response to health and care issues. 

 
Our activity in December included:

 

You Said:

We heard from an individual concerned they were not eligible for the shingles vaccination on the NHS, despite receiving Flu and COVID-19 vaccinations due to low immunity.


We Did:

We contacted NHS Sussex to clarify eligibility criteria and whether GPs have any flexibility to offer vaccination to those outside of these but at increased risk. NHS Sussex confirmed GPs have no flexibility outside the eligibility criteria.


You Said:

We heard from a person who had a negative experience of visiting a dentist, highlighting poor communication, lack of accessibility and a failure to respond to a complaint.


We Did:

We recorded the feedback and highlighted the options available. With their consent, we referred the enquirer to The Advocacy People for Independent Health Complaints Advocacy (IHCA) and gave them a copy of our Complaints Guide.
 

You Said:

We heard from someone with complex health needs and limited mobility who was anxious about their ability to access health services or the ability of services to deliver services to their home.
 

We Did:

We spoke to NHS Sussex who arranged for the practice manager at their GP surgery to contact the enquirer and explore support options. We also explained options around social care and health complaints if concerns escalated.
 

You Said:

We heard from the friend of someone with neurodivergence who was extremely anxious about required dental treatment, both in terms of potential cost and the process.
 

We Did:

We shared a copy of our Dentistry Guide so they could be clear on what is covered by NHS treatment. We also shared details of the Sussex Dental Helpline so they could clarify NHS options for root canal costs and sedation.
 
Read the full December document on our website, via the link below.
‘You Said, We Did’ – December 2023

Tell Us Your Experiences

 
Please tell us your experiences of local health and care services via our Feedback Centre and let us know how this has been for you.
 
We want to hear if it has been good, bad or indifferent.
 
Help and support with Health and Care
If you need help or support related to health or care, then please contact our Information & Signposting Service via
 
Tel: 0333 101 4007
Email: enquiries@healthwatcheastsussex.co.uk
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