React19: Community Newsletter #6 Giving Tuesday

November 28, 2022

Celebrating One Year of Advocacy, Hope and Healing

In recognition of React19's one year anniversary, we wanted to share why we created a volunteer-run nonprofit organization of vaccine-injured people helping other vaccine-injured people.

React19 is serving a need that's completely unmet through governmental and patient advocacy. There's no organization fighting for us, no research for us, and no care for us. There's no one coming to save us. So we needed to do it ourselves.

We depend entirely on the generosity of independent donors. Please help us further these efforts by supporting us this coming year!

What will the next year bring? Building on our Care-Fund, we will launch a research fund for independent research into etiology and solutions for this new disease and expand patient and provider education.

Support Those in Need This Giving Tuesday

On this giving Tuesday please join React19 to help support those who have no other means to help themselves. 100% of your donation goes into the hands of the vaccine injured.

Three Ways to Donate:

1. Signup and shop as usual with Amazon Smile. Amazon will donate 0.5% of purchases to React19 to help assist patients in need: https://smile.amazon.com/ch/87-3643837.

2. Donate via phone by texting REACT to 50155

3. Visit our donation page to donate via Venmo or with your card: https://react19.org/donate.

4. For larger donations, please contact React19 directly at info@react19.org

**React19 is a 501(c)3 so your donation is tax deductible!

DONATE NOW

Symptoms Index:
Search Stories and Seek Solutions

Unsure what solutions can help your specific symptoms? Check out our new tool to read stories and solutions from people who have a similar experience to yours.

https://react19.org/symptoms-index/

Visit the Symptoms Index

Mental Health Matters: Let’s Talk About
Depression, Suicide, and Chronic Illness

Join React19's Patient Research and Education Officer Dr. Danice Hertz Tues Nov. 29 @ 8EST as she discusses depression and suicide due to chronic illness with licensed psychologist and active clinician, Dr. Jim Jackson.

Whether you yourself are experiencing these hardships or have a family member at risk, please join us for a conversation to increase understanding, awareness, as well as tools to help this unique circumstance. This talk is open to all COVID long-haulers, ME-CFS patients, COVID vaccine-injured, and their family members. Together we can help take care of each other!

Zoom link: https://bit.ly/3F7raju
Passcode: 215653

As the vaccine-injured navigate the chronic phase of their illness, the mental toll is often just as difficult as the physical struggle. React19 wants you to know that you’re not alone and that your life matters. Resources are available. Help is here. Reach out to social-work@react19.org or visit

https://react19.org/how-to-find-a-mental-health-counselor

What is the rate of adverse events? Is it "rare"?

According to a study on serious adverse events following COVID-19 vaccination, Dr. Joe Fraiman et al have recently indicated that the rate of adverse events could be as high as 1 in 800. Source: https://pubmed.ncbi.nlm.nih.gov/36055877

The German Federal Ministry of Health reports 1 in 5000 Source: https://www.pei.de/SharedDocs/Downloads/EN/newsroom-en/dossiers/safety-reports/safety-report-27-de cember-2020-31-march-2022.pdf?__blob=publicationFile&v=8

The World Health Organization defines "uncommon" as 1-100 in 1000, and "rare" as 1 in 10,000

When asked by React19 if they could define “rare,” the U.S. Food and Drug Administration could not provide a straight answer.

It always seems “rare” until it happens to you, in which case you wish somebody would listen. But finding someone to help truly is “rare.”
To our supporters: THANK YOU for being there for us!

“I Woke Up With My Entire Face On Fire”

Claire, a 22-year-old yoga teacher, got her vaccine because she thought it was safe and effective for everyone and that she was doing the right thing for herself and for others. That didn't end up being the case. Listen to her heartbreaking testimony in front of the Orange County (Fla.) Board of County Commissioners

Watch Claire's Testimony

In the News:
FDA Urged to Publish Follow-up Studies on COVID-19 Vaccine Safety Signals

In July 2021 the U.S. Food and Drug Administration quietly disclosed findings of a potential increase in four types of serious adverse events in elderly people who had had Pfizer’s covid-19 vaccine: acute myocardial infarction, disseminated intravascular coagulation, immune thrombocytopenia, and pulmonary embolism.

Little detail was provided, such as the magnitude of the increased potential risk, and no press release or other alert was sent to doctors or the public. The FDA promised it would “share further updates and information with the public as they become available.” More than a year later, the agency has not published a press release, or notified doctors, or published the findings by preprint or the scientific literature or updated the vaccine’s product label.

Read Full Article in BMJ

Donation Via Venmo

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