By Carlos Briceño on 01/09/2023
For months, people from across the U.S. have been working hard with members of the Huntington’s Disease Society of America’s (HDSA) advocacy caucus to convince members of Congress to pass the Huntington’s Disease Parity Act. My wife, Jill, who is gene-positive for Huntington’s disease (HD), and I were just two of them. Unfortunately, our efforts […]
The post Failure to Pass the HD Parity Act Angers My Gene-positive Wife appeared first on Huntington's Disease News.
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For months, people from across the U.S. have been working hard with members of the Huntington’s Disease Society of America’s (HDSA) advocacy caucus to convince members of Congress to pass the Huntington’s Disease Parity Act. My wife, Jill, who is gene-positive for Huntington’s disease (HD), and I were just two of them. Unfortunately, our efforts […]
The U.S. Food and Drug Administration (FDA) has agreed to review Neurocrine Biosciences’ supplemental new drug application (sNDA) for valbenazine to treat chorea caused by Huntington’s disease. “This sNDA filing advances our effort to bring a potential new treatment option to the many thousands of people experiencing chorea associated with Huntington disease in the U.S.,” Eiry W. […]
