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Tomorrow is Rare Disease Day 2023 - 28 February
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse – but united in purpose.
Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.
We support the Rare Disease Day as is an important date for CHAMP1 community too!
More about Rare Disease Day 2023 here: https://www.rarediseaseday.org
How to participate and support?
Tomorrow, 28th of February, repost CHAMP1 Foundation's posts and tag @Champ1Research using the hastag: #RareDiseaseday2023 and also #CHAMP1Research. Post and tag/using the hastag is important to raise awareness for CHAMP1.Feel free to create a post sharing your CHAMP1ON/family story.
#RareDiseaseDay2023 #CHAMP1Research #CHAMP1ResearchFoundation
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