Eating Disorders Awareness Week
Eating Disorders Awareness Week (EDAW) is an annual campaign to educate the public about the realities of eating disorders and to provide hope, support, and visibility to individuals and families affected by eating disorders. Eating Disorders Awareness Week 2023 is taking place Monday, February 27 - Sunday, March 5 .
About a third of people with intellectual disability have feeding issues, such as difficulty chewing or swallowing. This can result in poor growth and nutritional deficiencies, such as failure to thrive, and lifelong food and texture aversions. In addition, some studies estimate that about 23 percent of individuals with eating disorders (particularly anorexia) have co-occurring autism spectrum disorder (ASD; Numata, et al., 2021; Tchanturia, et al., 2013) or display high prevalence of associated characteristics like rigid thinking, sensory processing differences (atypical interoception), and emotional regulation difficulties (Carpita, et al., 2020; Jack, 2021). Having both ASD and anorexia is associated with prolonged symptoms and poorer outcomes (Saure, et al., 2021). This indicates the need for increased attention to potential eating disorders and support in helping those we serve obtain effective treatment.
References:
Adams, K.L., Murphy, J., Catmur, C., & Bird, G. The role of interoception in the overlap between eating disorders and autism: Methodological considerations. European Eating Disorders Review, 2022 Sep;30(5):501-509. doi: 10.1002/erv.2905. Epub 2022 Apr 11.
Carpita, B., Muti, D., Cremone, I.M., Fagiolini, A.2, Dell'Osso, L. 1. Eating disorders and autism spectrum: links and risks. CNS Spectrum, 2022 Jun;27(3):272-280. doi: 10.1017/S1092852920002011.
Jack, Claire. Why so many people with autism have eating disorders. Psychology Today, 2021, Sep.
Numata, N., Nakagawa, A., Yoshioka, K. et al. Associations between autism spectrum disorder and eating disorders with and without self-induced vomiting: an empirical study. J Eat Disord 9, 5 (2021). https://doi.org/10.1186/s40337-020-00359-4
Phillips, Laura. Body image, eating disorders, and individuals with disabilities. Illinois State University News, 2021, Jan.
Saure, E., Laasonen, M., & Raevuori, A. Anorexia nervosa and comorbid autism spectrum disorders. Current Opinion in Psychiatry, 2021 Nov 1;34(6):569-575. DOI: 10.1097/YCO.0000000000000742
Tchanturia, K., Smith, E., Weineck, F. et al. Exploring autistic traits in anorexia: a clinical study. Molecular Autism 4, 44 (2013). https://doi.org/10.1186/2040-2392-4-44
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Several NCSS staff members including Executive Director Pam Flaherty, Associate Director Karen Weigle, and Clinical Director Jill Hinton recently visited START teams in California! They met with START teams in East Bay, Golden Gate, and South Central LA. We are so proud of all the hard work being done by all our START teams across the country!
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New Center on IDD and Mental Health Conditions
Seeks Steering Committee
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Through a cooperative agreement with the National Association of State Directors of Developmental Disabilities Services (NASDDDS), ACL has launched a new center to improve support for people with intellectual and/or developmental disabilities (IDD) who have mental health conditions.
This center will focus on capacity building by supporting state agencies with policy development, service design, and service coordination resources. Guided by people with lived experience, the center also will provide information, training, and peer-to-peer learning for people with I/DD who have mental health conditions, their families, and the professionals who work with them.
The center is currently recruiting for its steering committee, which will make important recommendations on how the center should move forward. The steering committee of 12 people will meet 4 times per year. Steering committee members and, if needed, their support staff will be paid to participate in this project.
A recruitment explainer video by NASDDDS partner Green Mountain Self-Advocates is posted on the NASDDDS YouTube channel. The three-minute video includes open captions and American Sign Language interpretation.
If you are interested in joining the committee, email snonnemacher@nasddds.org, call 570-460-3964, or fill out the interest form by March 17, 2023.
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SNTI 2023 Content Strands
Each year, the START National Training Institute features a wide variety of sessions organized along different content strands. These content strands can help you select your breakout sessions according to your interests and area of practice. We encourage you to review the current schedule and identify the content strand you would like to follow. When you register, you can pick your breakout sessions at that time, with the option to add or change breakout sessions later. Further breakout session instructions will be sent closer to the event. There are four content strands for the 2023 SNTI:
- Strength-Based Approaches, Inclusion, Community Connection
- Integrated Health & Wellbeing
- Evidence-Informed Practices & Policy
- Cross-Systems Crisis Prevention & Intervention Through Connection
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Russell Lehmann
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As a subscriber to News & Views, you're likely familiar with our monthly videos from autism advocate, poet, and speaker Russell Lehmann. Russell will be speaking at the START National Training Institute on Sunday, Aoril 30th, during the Coffee House. Listen to some of his poetry in the video above. Also check out his past videos and get excited to see him in person!
Click here to view a YouTube playlist of Russell's recent videos for NCSS.
Click here to view Russell's TEDx Talk entitled "When Ignorance Becomes Awareness."
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Training & Professional Development
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IDD-MH Professional Development Series
Spring courses underway!
The IDD-MH Professional Development Series is designed to build expertise in professionals through evidence-based instruction and best practices. These courses are targeted to specific roles within human service delivery to enhance the ability to provide effective services for people with intellectual/developmental disabilities and mental health needs. All courses consist of six live webinar sessions facilitated weekly via Zoom (exact dates provided during registration).
These courses are offered twice a year, in the fall and spring. Participants should register in advance before the first session occurs. If you miss the start of a spring course, don't worry, just plan to join us in the fall! In addition to members of the START network, these courses are open to all interested professionals. Feel free to invite your colleagues to register.
Care Coordinator Course begins March 7 - register by March 6th!
Mobile Crisis Responder Course begins April 4 - register by April 3rd!
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National Research Consortium
Request for Research Project Proposals
The National Research Consortium on Mental Health in Intellectual and Developmental Disabilities (MH-IDD) is seeking innovation research grant applicants with a focus on improving the health and well-being of individuals with MH-IDD service needs. The application must clearly articulate how the project meets the National Research Consortium's mission. The National Research Consortium prioritizes four areas of grant funding:
- Expanding the use of positive psychological methods;
- Developing and scaling evidenced-based interventions;
- Expanding capacity and reducing service disparities; and
- Revising and/or developing accessible measures.
Additional information about the National Research Consortium can be found on our website. This year, the National Research Consortium will prioritize applications that also address racial, ethnic, and socioeconomic disparities.
The National Research Consortium will fund grants up to $35,000. Applications that request less funds are welcome. Applications require an institutional match, often represented as coverage of effort/salary. For other information about grant requirements, please visit the National Research Consortium webpage. Applications are accepted on a rolling basis.
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Do you have a START Story you want to share? We want to hear from you! If you know of a START team member(s) or an individual receiving services who are putting START values and principles in action, let us know and you might be featured in News & Views. Contact your project facilitator or marketing manager Jackie Drake at jacquelyn.drake@unh.edu.
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Have a healthy and happy week,
National Center for START Services
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