Facebook post from Canadian Organization for Rare Disorders
Petition closes on Aug 31! Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from Chris Lewis MP*
The petition calls upon the Government of Canada to:
- Implement the National Strategy for Drugs for Rare Diseases (NSDRD) to help patients access the treatments they need
- Work with the provinces to ensure immediate access to rare disease medicines currently available in Canada
- Extend the funding for rare disease medicines as part of the NSDRD, indefinitely
- Ensure that CORD and the Regroupement québécois des maladies orphelines (RQMO) are key partners in discussions on the implementation of the NSDRD
- Build out the NSDRD to include centres of expertise so that the new funding for medicines contributes to better care for all Canadians with rare diseases
*Member of Parliament
Chris Lewis
Essex
Conservative Caucus
Ontario
(2051 signatures)
LINK
https://petitions.ourcommons.ca/en/Petition/Details?Petition=e-4414
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