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Strength & Conditioning Training for Teenage Boys with Haemophilia
The concept of formalised strength and conditioning training is something that, as a teenager with haemophilia, is not on your radar. In fact, you may never even have heard of it. The idea of weight training, speed and agility training, plyometrics, fitness testing, pre-habilitation, training for power and everything else that makes up ‘Strength and Conditioning’, has, to date not been an option for people with haemophilia. Until recently, you would have been advised to play a sport or activity that allows you to maintain good health, with very low risk of having a bleeding episode. However, that was then and this is now. Thanks to improvements in treatment, particularly the use of prophylaxis, the sporting/recreational options that are available to you nowadays are far greater than in the past. You can now enjoy competitive sports that would have been unavailable to you previously and you can now play them at a higher level. Of course, you must be sensible with your choices. Playing sports at a higher level, however, comes at a price. All sports carry the risk of injury, regardless of whether you have haemophilia or not, and the higher the level you play the sport, the greater the demand on your body and the greater the risk of injury. Minimising the risk of injury is an important aspect of strength and conditioning training. Becoming stronger and better conditioned for the sport you play reduces the risk of injury. Did you know that a large proportion of injuries incurred during a team sport (e.g. GAA football, hurling, soccer, basketball, etc.) are NON-CONTACT injuries? In other words, the athlete gets injured without incurring an impact by an opposing player. A classic example is an ACL tear (i.e. a tear to the Anterior Cruciate Ligament, which is a ligament in the knee). Many athletes who incur an ACL injury do so when jumping up to catch a ball and landing badly. No impact required. Teaching good landing mechanics, maintaining these mechanics under the pressure of a tackle and having very strong legs can reduce the risk of ACL tears – that is where Strength and Conditioning comes in.
John Stack, Certified Strength and Conditioning Specialist
To read more of this article click here
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Congratulations to Brian & Kate
The Irish Haemophilia Society would like to wish our ex-Board Member and good friend Brian O'Riordan and his new wife Kate a huge congratulations on their wedding this November in Thailand. We had the pleasure of meeting Kate during the summer in Ireland and you found a great match Brian! Kate you have the unfortunate luck of acquiring all of us as your friends now too!! Wishing you both all the very best life has to offer you together for now and always.
All the staff at the I.H.S.
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AGM 2016
4th to 6th March
Hotel Kilkenny
Preliminary Programme
Friday 4th March
6.00 p.m. – 7.30 p.m. Registration
Saturday 5th March
10.00 a.m. – 12.30 p.m. Annual General Meeting
12.30 p.m. – 1.30 p.m. Lunch
1.30 p.m. – 3.30 p.m. New Developments
3.30 p.m. – 4.00 p.m. Coffee
4.00 p.m. – 5.00 p.m. Open Forum with Treatment Centres
7.15 p.m. Gala Dinner
Sunday 6th March
10.00 a.m. – 11.00 p.m. Vietnam: GAP Programme
10.00am – 11.00am Inhibitors
11.00 a.m. – 11.30 a.m. Coffee
11.30 a.m. – 12.45 p.m. IHS History
12.45 p.m. – 2.00 p.m. Lunch
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Another Congratulations!!!!!!!!
We would also like to say a big huge congratulations to Sarah Gilgunn on receiving her PhD in Immunology and Biochemistry. Sarah is a lifelong member of the I.H.S. and Vice-Chairperson of our Board and we wish you all the best in your future endeavours from all at the I.H.S.
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I.H.S. Autumn Magazine 2015
Read Brian's CEO report on the New Children's Hospital and the Tender and Procurement System in Europe, John Stack's article on Strength and Conditioning Training for Teenage Boys with Haemophilia & Severe Bleeding Alert Cards and much much more...........
Download the latest I.H.S. Autumn 2015 Magazine.
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Severe Bleeding Disorder Alert Cards
A reminder to you all to make sure that you carry with you at all times your ‘Severe bleeding disorder alert card’. This is very important. Your consultant haematologist at your haemophilia treatment centre will provide you with a card. If you have not received same, please ask for one when you are next attending your treatment centre. If an individual with haemophilia presents at an emergency department with a bleeding episode that requires treatment with factor concentrate, a number of delays can occur. Firstly, the triage nurse may not be familiar with haemophilia and may not be aware of the fact that factor concentrates should be given without delay. The doctor seen at the Emergency Department may be
similarly unfamiliar with haemophilia and may order tests, x-rays or scans to confirm a bleeding episode is present before ordering factor concentrate. There may be a delay in locating the factor concentrate that is stored in the hospital. There may be a delay if a consultant haematologist in the hospital has to sign off before the factor concentrate is to be used. In a normal scenario in an Accident & Emergency Department when a person without haemophilia attends, the person is triaged, seen by a doctor, diagnosed and then treated. The difference with a person with haemophilia is that it is necessary to treat the bleeding episode with factor concentrate without delay and then follow up with diagnostic scans or other tests required after giving treatment. The health care workers in the emergency departments may be reluctant to do this and we have recorded a number of cases where people with haemophilia have been subjected to long delays in emergency departments before receiving factor concentrate because of some of the above-mentioned scenarios.
To read more about this click here
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Planned Giving
If you would like to make a difference to others, why not commit to a planned monthly or annual donation to the Irish Haemophilia Society at a level that you can afford, even €10 a month can make a difference. Sometimes a small thing you can do can make a big difference to someone else. If you would like information on our Planned Giving please contact Nina on 01-6579900 or email nina@haemophilia.ie.
“We make a living by what we get, but we make a life by what we give” Winston Churchill
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Christmas is here boys & girls!!!!!!!!!!!!!!
We are all very excited about the LATE LATE TOY SHOW TONIGHT in the office!!!! We know one little elf who is very excited about it!!! RTE One at 9.35 p.m. Christmas is not just for children, it is for big children too!!!!
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New Baby's!!!!!!
We are all about the good news this month in the I.H.S. and we would like to wish John & Ellie Stack massive congratulations on the birth of their 4th boy Naoise!! No doubt the lads already have big plans for him & hope mom and new baby are being looked after by all the men!!
And also a big congratulations to Karen & Alan Whelan on the birth of their daughter Amelia May & to Grandparents Michael & Ann Davenport who are no doubt spoiling the little lady & her mom rotten!!
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Upcoming I.H.S. Events in 2016
March May
AGM Carrier Conference
4th – 6th March 7th – 8th May
Hotel Kilkenny Castleknock Hotel, Dublin
June September
Parents Conference HCV/HIV Conference
24th – 26th June 24th – 25th September
Sheraton Hotel, Athlone Dunboyne Castle
October November
Members Conference PEP Conference
14th – 16th October 12th – 13th November
Radisson Blu, Sligo Clarion, Liffey Valley
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