Irish Haemophilia Update February 2015

Want to Volunteer with the IHS?

The IHS would like to congratulate the Educational Grant Award Winners in 2014.
We hope that the grant you have received will help you greatly with your studies and go on to achieve great success.

VHI Women's Mini Marathon
The VHI Women’s Mini Marathon is one of the biggest fundraising events in Europe and we are asking for your help again this year to raise funds in aid of the I.H.S. So ladies, if you would like to walk, jog or run the race this year we would really appreciate your support. The race is due to take place on Monday 1st June 2015 at 2p.m. and registrations are open from the 11th February 2015.
The entry fee is €18 and you can register online by logging onto www.vhiwomensminimarathon.ie or fill out an entry form printed in the Evening Herald every Wednesday and Saturday. Places fill up quickly so we advise you to register as soon as possible. You must register to ensure you have your race number to allow you to take part on the day and to receive your well-earned medal.
We would like to remind you this is a FEMALE ONLY event, the minimum age for walkers, joggers and fast joggers is 14 years and for runners and elite runners is 18 years.
The I.H.S will have a room in Buswells Hotel on the day, so come along to collect your T-Shirt before the race or it can be posted out to you in advance. In Buswells we will look after your belongings while you are taking part in the race, and then join us after for some refreshments as our way of saying thank you.
If you would like to take part in aid of the I.H.S., please contact me on 01-6579900 or email
nina@haemophilia.ie to register your interest or if you have any queries.
Nina Storey

AGM Registration

Registration for all participants (adults, crèche, cubs, kidlink and youth group) will take place on Friday evening from 6.00 p.m. to 7.30 p.m. in the Clonmacnoise Suite and on Saturday Morning from 9.00 a.m. to 10.00 a.m. also in the Clonmacnoise suite. Parents must attend registration with their children where the programme for the weekend and the requirements under our Child Protection Policy will be set out.

Do you have any publications or articles you would like to share with the I.H.S?
If any members have articles or personal written pieces that they would be happy to share with the I.H.S and it's members, we would be delighted to receive them. Also, if you were willing to write a piece for one of our publications from your own personal perspective you can contact Debbie at debbie@haemophilia.ie to discuss possible ideas.
If you have any questions regarding this contact
leah@haemophilia.ie

Comedy Night Out
The Laughter Lounge

Thursday, 28th May 2015
4 Great Comedians, Followed by a late bar with DJ.
The show starts at 8.30pm. This ‘Comedy Night’ is open to other fundraisers, to support the I.H.S. all you need to do is purchase your tickets directly from us. Tickets are €25 each and all proceeds from the sale of the tickets will come to the I.H.S.
Don’t delay, Limited Availability
Free cocktail between 7 - 7.30 p.m
You can purchase tickets at the AGM or contact Nina on:
01 657 9900 or nina@haemophilia.ie

Ageing Conference
15th - 17th May 2015
Hotel Kilkenny

Preliminary Programme
Saturday May 16^th
10.00 – 11.00              Ageing & Treatment Protocols

11.00 – 11.30              Working with your GP

11.30 – 12.00              Tea & Coffee Break

12.00 – 13.00              Orthopaedic Surgery

13.00 – 14.00              Lunch

14.00 – 15.30             Changing Bleeding Patterns & Pain Management

15.00 – 16.00 Tea & Coffee Break
16.00 – 17.00             Adapting your Home
Time TBC                  Dinner

Sunday May 17^th
10.00 – 11.00              Dealing with Multiple Medications

11.00 – 11.30              Tea & Coffee Break

11.30 – 13.00              Developing an Appropriate Exercise Programme

13.00 – 14.00              Lunch

More information on this event will be posted on www.ihs.ie in March.
Booking forms will be sent to members in April.

AGM & Conference
6th - 8th March

Ageing Conference
15th - 17th May

Parents Conference
19th - 21st June

Members Conference
16th - 18th October

Parents Empowering Parents (PEP) Conference
20th - 22nd November

Keep an eye on the website for Conference Programmes and Information nearer to the date of each.

Links to websites of possible interest.
www.haemophilia.ie
www.olchc.ie
www.wfh.org

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